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    Hypoparathyroidism

     

    Read our Quick Guide to Hypopara

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    Thyroid cancer

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    CaSR

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  • A quick guide to hypopara
  • Suspect you have hypopara?
  • Recently been diagnosed?
  • Causes
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  • Thyroid cancer
  • What you should know before – and after – thyroid surgery
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Thyroid cancer

Thyroid Cancer is rare but numbers are on the increase with about 2000 new cases a year affecting twice as many women than men. About 30% of those who have thyroid operations will experience temporary symptoms of low calcium and may require treatment. If treatment is still ongoing after 6 months it is known as ‘late hypocalcaemia’ or hypoparathyroidism and may be permanent, requiring lifelong medication. Late hypocalcaemia after total thyroidectomy is the commonest reported complication. The overall incidence is about 9%.

If you developed hypopara following an operation for thyroid cancer you will need to manage hypopara and thyroid medication as well as have regular neck checks and blood tests.

There are some excellent places to find support for thyroid cancer such as the Butterfly Thyroid Cancer Trust.

But only Hypopara UK provides ongoing support for people who went into hospital with one condition and came out with another. Our Facebook group is very friendly, informative and  and supportive and we highly recommend joining.

Our sister group is Thyroid Cancer Support UK. Both groups were set up together by Ruth Pink (thyroid cancer patient) and Liz Glenister (thyroid cancer & post surgical hypoparathyroidism patient) in 2005 to provide support for both conditions.

I was fifteen when I knew something was seriously wrong with me. My neck had swollen to twice its size and felt like a solid mass. My then GP didn’t believe I was sick and told me I was just going through puberty. It was only the protruding hard lump that had appeared in the […]

Read Isabel's story

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@ParathyroidUK

Help Lynn raise £450 to Raise money for Parathyroid UK, Butterfly Thyroid Cance.. Please #donate on @JustGiving and RT justgiving.com/crowd…

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10:52 pm · 8th August 2022
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NEW: UK audit of endocrine departments reveals extent of clinical need for improvements in routine care of those with chronic hypoparathyroidism. We hope this will lead to greater awareness of our needs and a change in practice. Thanks to all involved! onlinelibrary.wiley.…

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12:43 pm · 28th July 2022
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BALPREET - Living with Primary Hyperpara at 27. youtu.be/TW0gv_UpDlc via @YouTube #ParathyroidDiseaseAwarenessMonthJuly2022 #PHPT #PrimaryHyperparathyroidism pic.twitter.com/njYE…

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7:25 pm · 26th July 2022
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Drug Shortages: Only One Alpha 0.25mcg capsules or 2mcg drops currently available in UK. #Hypoparathyroidism patients told they ‘can manage a few days without’. They can’t! This medication keeps us alive and must be accessible @Soc_Endo @NHSEngland @NHSScotland @NHSWalesDU

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10:11 am · 20th July 2022
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Parathyroid UK
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'No-one blinked for the whole 8 minutes' said the audience of HCP's after watching this compelling slideshow by patient expert Cleo Conway-Bence at the first Parathyroid Study Day at Cork University Hospital. youtu.be/b3TzMYGK4B0 #ParathyroidAwarenessMonthJuly2022

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2:28 pm · 13th July 2022

Read our quick guide to hypoparathyroidism

All about hyperparathyroidism

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