24 hour online party
You are invited to join us at the famous annual Hypopara Day party 2024. We start in New Zealand and end in South America and patients from all over the world join in as their country wakes up. Its always a memorable social event as we gather together to celebrate another year of survival and share our stories..
Join us in the World Hypopara Day Party group on facebook on June 1st
Tell us about your kidneys! Are they functioning OK or not? Do you have hypercalciuria? Do you have nephrocalcinosis? Kidney disease? Post a selfie or an artwork or poem about your experience on June 1st. Don’t forget to share your photos and posts about Hypopara Day using the hashtag #HypoparaDay2024
Patient videos
We are delighted to bring you three videos we have made to mark Hypopara Day 2024. Christine, Lucy and Susanna talk about living with hypoparathyroidism, the shock of diagnosis, how it has impacted their daily lives and their concerns for the future and, in particular, their renal health. See more on our You Tube channel.
Videos funded by a donation from
Patient Survey
We are delighted to be partnering with Ascendis Pharma on a patient survey to find out about current medication regimens and how they impacts daily life.
Help us to fundraise
On JUNE 1st Becky Swadling and Claire Roy will be taking part in the SuperSprint triathlon at Blenheim Palace in honour of their best friend Clare who has hypoparathyroidism.
What better day to raise awareness then World Hypopara Awareness Day, when hypopara friends from all over the world come together to celebrate each other!
Here is the link to their Just Giving page – please support them if you can. This would be such a boost for our World Awareness Day celebrations. Thank you!