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The national voice for people living with parathyroid conditions

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  • Hypoparathyroidism

    Hypoparathyroidism

     

    Read our Quick Guide to Hypopara

    Suspect you have hypopara?

    Recently been diagnosed with hypopara?

    Find out more about hypopara

    What is hypopara?

    Causes of hypopara

    Diagnosis of hypopara

    Symptoms of hypopara

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    Related reading

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    Related conditions

    CaSR

    • A quick guide to hypopara
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  • Living with Hypopara
    • Get support
    • Self Help Guide
      • Understanding the basics
      • How to manage your calcium levels – practical steps
      • Understanding your tests
      • Understanding your medication
      • Diet in Hypoparathyroidism : general guidance
        • Diet in Hypoparathyroidism Part 1 : Calcium
        • Diet in Hypoparathyroidism Part 2 : Phosphate
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      • What else can I do to help myself?
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      • Your hormones and calcium
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Useful links for patients

NHS

NHS
Health information for the public: local services, health A-Z, medicines, healthy living advice, advice for carers, health news. You can give feedback.

NHS 111
Urgent and emergency care

 

Medicine safety

The Yellow Card Scheme
Please report any side effects from medicines here to the MHRA

 

Benefits & Employment

The Department for Work and Pensions (DWP)

The Benefits Enquiry Line
Tel 0800 882200

Disability and Employment
Latest regulations on your rights at work – Equality Act 2010

Citizens Advice Bureau

Benefits advice guide
The benefits online advice page

Employment Advice Guide
The employment online advice guide

 

Making a complaint

NHS Complaints
How to complain about NHS treatment or care

PALS
Patient Advice & Liason Service

The Patient’s Association
A national charity providing patients with an opportunity to raise concerns,get advice and share experiences of healthcare. Helpline 0845 6084455 or 0208 423 8999

Write to your MP
You can find out about your MP here and contact them by letter or email. Or, your local paper will give ‘surgery’ times when you can book an appointment with your MP.

Health Ombudsman
The role of the Ombudsman is to consider complaints that government departments, a range of other public bodies in the UK, and the NHS in England, have not acted properly or fairly or have provided a poor service.

 

Legal advice

National ProBono Centre
“Pro bono” is the term for free legal help for someone who cannot afford to pay for legal assistance and is not entitled to legal aid.

Legal Advice finder
Find legal advisers or solicitors near you

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Related publications

    We are proud to be affiliated with:

    ESE logo

    Our information is also endorsed by:

    BMA logo
    British Thyroid Association
    World Hypopara Awareness Day logo

    We are members of:

    Rare Diseases UK logo
    Genetic Alliance UK
    National Voices logo

    Footer

    Twitter
    Parathyroid UK
    Parathyroid UK
    @ParathyroidUK

    Let’s not forget that 75% of patients living with #hypoparathyroidism suffer a double whammy post thyroidectomy when they become hypothyroid AND hypoparathyroid. #WorldThyroidDay2023 twitter.com/physorg_…

    reply retweet favourite
    10:22 pm · 25th May 2023
    Twitter
    BTF Thyroid
    BTF Thyroid
    @britishthyroid

    Peri/menopause added to an existing thyroid condition can make it a challenging time for some midlife women. We’ve worked with Prof Annice Mukherjee on some new resources to help Read our article ↘ btf-thyroid.org/thyr… #WorldThyroidDay #menopause #perimenopause #thyroid pic.twitter.com/qIKS…

    reply retweet favourite
    10:10 pm · 25th May 2023 ·
    Retweeted by Parathyroid UK
    Twitter
    Parathyroid UK
    Parathyroid UK
    @ParathyroidUK

    “The causes of death in 12 patients appeared to be unrelated to HP but we found a high prevalence of chronic organ damages/comorbidities related to it in this group. Less than 25% documented HP correctly in the discharge letters, which indicates a high potential for improvement.” twitter.com/sociedad…

    reply retweet favourite
    6:29 am · 18th May 2023
    Twitter
    Parathyroid UK
    Parathyroid UK
    @ParathyroidUK

    The ESE and affiliated patient groups were able to meet online and in person at the #ECE2023 this morning to discuss EDCs, drug shortages and future events. pic.twitter.com/TWAa…

    reply retweet favourite
    9:32 pm · 16th May 2023
    Twitter
    Parathyroid UK
    Parathyroid UK
    @ParathyroidUK

    It’s been really encouraging to see so much great work going on into #parathyroids - and to be able to see it all online. Thanks to everyone and to @ESEndocrinology #ECE2023 pic.twitter.com/aMYZ…

    reply retweet favourite
    9:21 pm · 16th May 2023

    Read our quick guide to hypoparathyroidism

    All about hyperparathyroidism

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