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The national voice for people living with parathyroid conditions

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  • Hypoparathyroidism

    Hypoparathyroidism

     

    Read our Quick Guide to Hypopara

    Suspect you have hypopara?

    Recently been diagnosed with hypopara?

    Find out more about hypopara

    What is hypopara?

    Causes of hypopara

    Diagnosis of hypopara

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    Related reading

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    Related conditions

    CaSR

    • A quick guide to hypopara
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Patient information leaflets & other publications

Hypoparathyroidism leaflets

  • Hypoparathyroidism – patient leaflet

    Information and advice on managing your condition.

    The first ever patient information leaflet on Hypoparathyroidism was written and produced by Liz Glenister with Dr Mo Aye of our Clinical Advisory Team working in conjunction with the Society for Endocrinology (SfE). Regularly updated, it provides information and advice for patients to help them understand and manage this rare condition.

    You can also download a version of the leaflet in Spanish.

  • A patient guide to Hypoparathyroidism

    The latest (2022) expert recommendations from PARAT (the ESE educational programme on parathyroid disorders) for patients with hypoparathyroidism.

    This leaflet is currently only available to download

  • Treatment of Chronic Hypoparathyroidism in Adults

    This patient information leaflet was written in 2015 to accompany the first ESE clinical guidelines on the treatment of chronic hypoparathyroidism in adults.  

    It was developed by a group of patient organisations including Parathyroid UK in collaboration with the European Society of Endocrinology.

  • GP leaflet

    Managing hypoparathyroidism for GPs – leaflet

Hyperparathyroidism leaflets

  • Hyperpara leaflet

    Primary Hyperparathyroidism – patient leaflet

    Information and advice on managing your condition.

    Our patient information leaflet on Primary Hyperparathyroidism was written by Liz Glenister & Judith Taylor with the Parathyroid UK Clinical Advisory Team and endorsed by the Society for Endocrinology Clinical Committee of the Bone and Calcium Network. It was revised in 2019 following publication of the NICE guidelines on Primary Hyperparathyroidism.

    October 2016 ( revised October 2019).

    This leaflet was made possible thanks to a Patient Support Grant from the Society for Endocrinology

  • A patient guide to Primary Hyperparathyroidism

    The latest (2022) recommendations from PARAT (the ESE educational programme on parathyroid disorders) for patients with primary hyperparathyroidism.

    This leaflet is currently only available to download

Preconception, Pregnancy and Lactation

  • A patient parathyroid disorders guide during preconception, pregnancy and lactation

    The latest 2022 expert recommendations from PARAT (the ESE educational
    programme on parathyroid disorders) on managing preconception, pregnancy and lactation for patients with hypoparathyroidism or primary hyperparathyroidism.

    This leaflet is currently only available to download. 

     

About Parathyroid UK leaflets

  • About Parathyroid UK – leaflet

    Find out what we do and why, about our medical advisory team and a list of key research.

Other publications

  • Shire report

    ‘Living with chronic hypoparathyroidism’ – patient survey report 2017

    Read the results of our survey on 230 patients living with hypoparathyroidism. The report sets out for the first time the full extent of the hypopara patient experience in the UK.

    Findings describe daily challenges ranging from ‘the impact the condition has on patients’ ability to lead a normal life – to work, drive and socialise – to the frequency with which their condition causes them to make an unplanned stay in hospital, or a trip to A&E.’

    Conducted in collaboration with Shire 2017

  • Calcium-Sensing Receptor (CaSR) leaflet

Leaflet Order Form

  • Publications

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Thyroid Journal
Thyroid Journal
@thyroidjournal

The Results Are In! 2022 Top-Read Articles! What is the evidence to support #ActiveSurveillance vs #Thyroid #Surgery for #Thyroidcancer? ow.ly/7Qf350MwZt1 @AngelaLeung9 @Jasosamd @EndocrinologyM @OhioStateMed @hopkins_ent @UCLAHealth @UCSFMedicine #medtwitter #endotwitter pic.twitter.com/Glvt…

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7:28 pm · 24th January 2023 ·
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British Association of Endocrine&Thyroid Surgeons
British Association of Endocrine&Thyroid Surgeons
@BAETS_UK

Spaces still available at the BAETS thyroid & parathyroid masterclass. Provisional programme attached, book a place soon! pic.twitter.com/lG1J…

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2:22 pm · 20th January 2023 ·
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Radu Mihai
Radu Mihai
@RaduMiSurgeon

Looking forward to meeting trainees and Consultants with an interest in endocrine surgery at the annual BAETS masterclass in thyroid-parathyroid surgery due on 6th March in Birmingham. A day of lectures and case-discussions, meeting friends and mentors. pic.twitter.com/d8xD…

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11:03 pm · 12th January 2023 ·
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Parathyroid UK
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@ParathyroidUK

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12:28 am · 22nd December 2022
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Parathyroids are glands too…. twitter.com/Your_Hor…

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12:42 am · 20th December 2022

Read our quick guide to hypoparathyroidism

All about hyperparathyroidism

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