Hypoparathyroidism leaflets
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Hypoparathyroidism – patient leaflet
Information and advice on managing your condition.
The first patient information leaflet on Hypoparathyroidism was written and produced by Liz Glenister and Dr Mo Aye with Hypopara UK Clinical Advisory Team working in conjunction with the Society for Endocrinology (SfE).
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Treatment of Chronic Hypoparathyroidism in Adults
This is the patient information leaflet which accompanies the ESE new clinical guidelines on the treatment of chronic hypoparathyroidism in adults.
These guidelines, published in the European Journal of Endocrinology in August 2015 are the first to address this condition. They are aimed at improving the clinical treatment of patients with hypoparathyroidism as well as addressing the effect of the disorder during pregnancy and breastfeeding.
Hypopara UK was honoured to work with the European Society of Endocrinology on the guideline and with other patient support groups to develop this leaflet which provides information on the condition and explains what to expect during clinical diagnosis and management.
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Hyperparathyroidism leaflets
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Primary Hyperparathyroidism – patient leaflet
Information and advice on managing your condition.
Our patient information leaflet on Primary Hyperparathyroidism was written by Parathyroid UK with the Parathyroid UK Clinical Advisory Team and endorsed by the Society for Endocrinology Clinical Committee of the Bone and Calcium Network. It was revised in 2019 following publication of the NICE guidelines on Primary Hyperparathyroidism.
October 2016 ( revised October 2019).
This leaflet was made possible thanks to a Patient Support Grant from the Society for Endocrinology
Parathyroid UK leaflets
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About Parathyroid UK – leaflet
Find out what we do and why, about our medical advisory team and a list of key research.
Other publications
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Living with chronic hypoparathyroidism
We are delighted to bring you the results of the ‘Living with Chronic Hypoparathyroidism’ survey which was conducted by Shire, in collaboration with Hypopara UK, on patients with this rare condition.
The report sets out for the first time the extent of the hypopara patient experience in the UK. Findings describe daily challenges ranging from ‘the impact the condition has on patients’ ability to lead a normal life – to work, drive and socialise – to the frequency with which their condition causes them to make an unplanned stay in hospital, or a trip to A&E.’
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Order some of our leaflets and publications
You can download/print PDFs of our leaflets and publications by clicking on the links above.
Alternatively you can order hard copies through the post here.