Patient information leaflets & other publications

Hypoparathyroidism – patient leaflet
Information and advice on managing your condition.
The first ever patient information leaflet on Hypoparathyroidism was written and produced by Liz Glenister with Dr Mo Aye of our Clinical Advisory Team working in conjunction with the Society for Endocrinology (SfE). Regularly updated, it provides information and advice for patients to help them understand and manage this rare condition.
You can also download a version of the leaflet in Spanish.
Treatment of Chronic Hypoparathyroidism in Adults
This patient information leaflet was written in 2015 to accompany the first ESE clinical guidelines on the treatment of chronic hypoparathyroidism in adults.
It was developed by a group of patient organisations including Parathyroid UK in collaboration with the European Society of Endocrinology.
Managing hypoparathyroidism for GPs – leaflet

Primary Hyperparathyroidism – patient leaflet
Information and advice on managing your condition.
Our patient information leaflet on Primary Hyperparathyroidism was written by Liz Glenister & Judith Taylor with the Parathyroid UK Clinical Advisory Team and endorsed by the Society for Endocrinology Clinical Committee of the Bone and Calcium Network. It was revised in 2019 following publication of the NICE guidelines on Primary Hyperparathyroidism.
October 2016 ( revised October 2019).
This leaflet was made possible thanks to a Patient Support Grant from the Society for Endocrinology

About Parathyroid UK – leaflet
Find out what we do and why, about our medical advisory team and a list of key research.

‘Living with chronic hypoparathyroidism’ – patient survey report 2017
Read the results of our survey on 230 patients living with hypoparathyroidism. The report sets out for the first time the full extent of the hypopara patient experience in the UK.
Findings describe daily challenges ranging from ‘the impact the condition has on patients’ ability to lead a normal life – to work, drive and socialise – to the frequency with which their condition causes them to make an unplanned stay in hospital, or a trip to A&E.’
Conducted in collaboration with Shire 2017
Calcium-Sensing Receptor (CaSR) leaflet

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Publications
Hypoparathyroidism – Parathyroid UK patient leaflet
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Treatment of Chronic Hypoparathyroidism in Adults – ESE patient leaflet
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Managing hypoparathyroidism for GPs – leaflet
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Primary Hyperparathyroidism – patient leaflet
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About Parathyroid UK – leaflet
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Living with chronic hypoparathyroidism (Shire) report
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Calcium-Sensing Receptor (CaSR) - leaflet
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