• Skip to primary navigation
  • Skip to main content
  • Skip to footer
Parathyroid UK Homepage

The national voice for people living with parathyroid conditions

Helpline 01342 324091
  • Donate
  • About us
    • Our Teams
      • Board of Trustees
      • CEO & Management Committee
      • Support Team
    • Our Medical Advisors
    • Our history
    • Annual reports
    • Contact Us
  • Shop
  • News
    • Latest News
    • Newsletters
  • Home
  • Hypoparathyroidism

    Hypoparathyroidism

     

    Read our Quick Guide to Hypopara

    Suspect you have hypopara?

    Recently been diagnosed with hypopara?

    Find out more about hypopara

    What is hypopara?

    Causes of hypopara

    Diagnosis of hypopara

    Symptoms of hypopara

    Treatment of hypopara

    Related reading

    Thyroid cancer

    Thyroid surgery

    Related conditions

    CaSR

    • A quick guide to hypopara
    • Suspect you have hypopara?
    • Recently been diagnosed?
    • Causes
    • Diagnosis
    • Symptoms
    • Treatment
    • Thyroid cancer
    • What you should know before – and after – thyroid surgery
    • Calcium-sensing Receptor (CaSR)
    • Related conditions
  • Living with Hypopara
    • Get support
    • Self Help Guide
      • Understanding the basics
      • How to manage your calcium levels – practical steps
      • Understanding your tests
      • Understanding your medication
      • Diet
        • Diet in Hypoparathyroidism : Calcium
      • Exercise
      • Employment and Benefits
      • What else can I do to help myself?
    • For Women
      • Your hormones and calcium
      • For our hypopara mums
      • Your pregnancy, birth & breastfeeding journey
    • For Parents
      • Fertility and starting a family
      • My baby has hypoparathyroidism
      • Looking after children with Hypopara
    • Emergency ID items
    • Patient stories
    • Hypopara patient videos
    • Hypopara patient podcasts
  • Hyperparathyroidism
    • Support
    • Your parathyroid glands
    • Primary Hyperparathyroidism
    • Secondary Hyperparathyroidism
    • Tertiary Hyperparathryoidism
    • Parathyroid cancer
    • Hyperpara Patient Videos
    • Patient stories
  • Get Involved
    • Become a member
    • Donate
    • Buy a Gift
    • Shop
    • Fundraise for us
    • Sponsor a fundraiser
      • World Hypopara Awareness Day 2022
    • Support Groups
  • Resources
    • Patient information leaflets & other publications
    • Support Groups
    • Emergency ID items
    • Find a Doctor
    • Guidelines
    • Key Research on Hypoparathyroidism
    • Newsletters
      • World Hypopara Awareness Day 2021
    • Key Research on Primary Hyperparathyroidism
    • Useful links for patients
    • European and Global Hypopara organisations
    • Health Organisations
  • Join us
  • Medical Professionals
    • Our Medical Advisors
    • Guidelines
    • Research
    • Order resources
    • Learning resources for healthcare professionals
      • Hypoparathyroidism for professionals
      • Hyperparathyroidism
      • Patients’ lived experiences
    • For Endocrine Nurses
    • For GPs
  • Patient information leaflets & other publications
  • Support Groups
  • Emergency ID items
  • Find a Doctor
  • Guidelines
  • Key Research on Hypoparathyroidism
  • Newsletters
  • Key Research on Primary Hyperparathyroidism
  • Useful links for patients
  • European and Global Hypopara organisations
  • Health Organisations

World Hypopara Awareness Day 2021

World Hypopara Awareness Day is an annual global awareness and education event, held on 1st June and it’s the biggest day of our year. Every year, events are organised by hypopara patient groups and others around the world who want to make a difference. For more information or to find a group in your own country please visit our dedicated World Hypopara Awareness Day website.

World Hypopara Day 2021

This year our theme was ‘Supporting our mental health’ and our aim was to raise awareness about the difficulties patient face due to hypoparathyroidism – not just physically but mentally and emotionally too.

For patients, the famous annual Hypopara Day party ran for 24 hours online and attracted patients from 28 countries to the World Hypopara Day Party group! Was asked people to tell us ‘what makes your butterfly soar?’. The group will remain open so you can still add your post and read some of the brilliant responses. 

For clinicians, we published our ‘Patient Voice ‘ presentation from the ECE2021 which has been viewed by over a thousand endocrinologists to date. Now you can also see our CEO and medical advisors talk for the first time about the issues which cause patients so much difficulty and what doctors should be doing to help improve matters.
Watch the session in our You Tube channel.

 

We published a moving piece from patient Jo Hill about how unstable calcium levels severely affected her mental health.

 

We brought news from Bryony Morris about her family’s incredible fundraising challenge which finished on World Hypopara Day raising a fantastic amount to go towards our home calcium tester trial. Read the story of her sister Finn who was diagnosed with hypoparathyroidism last year. The page is still open for donations.

 

 

We co – hosted a live event with the Hypoparathyroidism Association and Ascendis Pharma where you can where you can watch a very moving and award winning film by Ariana Feiner and see her read her children’s book too. You will be able to watch the recording of this event very soon!

 

THANK YOU

Thank you to everyone who took part in World Hypopara Day 2021 and helped us to raise awareness about our rare and challenging condition. Thank you to all the patient groups around the world and to everyone who worked  so hard behind the scenes to make this happen. We hope you all had a good day wherever you are and celebrated the positive in our lives.

 

Until next year….

 

We are proud to be affiliated with:

ESE logo

Our information is also endorsed by:

BMA logo
British Thyroid Association
World Hypopara Awareness Day logo

We are members of:

Rare Diseases UK logo
Genetic Alliance UK
National Voices logo

Footer

Twitter
Thyroid Journal
Thyroid Journal
@thyroidjournal

The Results Are In! 2022 Top-Read Articles! What is the evidence to support #ActiveSurveillance vs #Thyroid #Surgery for #Thyroidcancer? ow.ly/7Qf350MwZt1 @AngelaLeung9 @Jasosamd @EndocrinologyM @OhioStateMed @hopkins_ent @UCLAHealth @UCSFMedicine #medtwitter #endotwitter pic.twitter.com/Glvt…

reply retweet favourite
7:28 pm · 24th January 2023 ·
Retweeted by Parathyroid UK
Twitter
British Association of Endocrine&Thyroid Surgeons
British Association of Endocrine&Thyroid Surgeons
@BAETS_UK

Spaces still available at the BAETS thyroid & parathyroid masterclass. Provisional programme attached, book a place soon! pic.twitter.com/lG1J…

reply retweet favourite
2:22 pm · 20th January 2023 ·
Retweeted by Parathyroid UK
Twitter
Radu Mihai
Radu Mihai
@RaduMiSurgeon

Looking forward to meeting trainees and Consultants with an interest in endocrine surgery at the annual BAETS masterclass in thyroid-parathyroid surgery due on 6th March in Birmingham. A day of lectures and case-discussions, meeting friends and mentors. pic.twitter.com/d8xD…

reply retweet favourite
11:03 pm · 12th January 2023 ·
Retweeted by Parathyroid UK
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

pic.twitter.com/Q3fc…

reply retweet favourite
12:28 am · 22nd December 2022
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

Parathyroids are glands too…. twitter.com/Your_Hor…

reply retweet favourite
12:42 am · 20th December 2022

Read our quick guide to hypoparathyroidism

All about hyperparathyroidism

Parathyroid UK
6 The Meads
East Grinstead
West Sussex
RH19 4DF

Contact us

Helpline: 01342 324091

© 2023 Parathyroid UK · All Rights Reserved · Privacy · Disclaimer · Site by Charity & Biscuits.