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    Hypoparathyroidism

     

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European and Global Hypopara organisations

European Hypopara organisations

UK
Parathyroid UK
Leader: Liz Glenister

Republic of Ireland ( branch of Parathyroid UK)
Leader: Fiona O’Shea

France
Hypoparathyroidisme France
Leader; Natalie Grosset Holenka

Italy
Italian Association for Patients with Hypoparathyroidism (APPI)
Leader: Cristina Galligani

Germany
Insensu
Leader: Frauke Sieger

Netzwerk Hypopara Germany
Leaders: Dieter Krogh, Claudia Josewski, Brigitte Leibig

Norway
Hypopara Norge
Leader: Helen Dahl-Hansen

Sweden
Swedish Hypopara Association
Leader: Agneta Björnryd

Spain
AECAT Spanish Association for Thyroid Cancer patients
Hypopara Leader: Aranxta Saez Sanchez


Global hypopara organisations

USA
Hypoparathyroidism Association 
Leader: Deb Murphy

Australia
Hypoparathyroidism Australia
Leader: Vacancy

Kingdom of Bahrain
Hypopara Bahrain
Leader : Hassan Fadhul

New Zealand
HypoparaNZ 
Leader : Sallie Hobbs

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Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

Help Lynn raise £450 to Raise money for Parathyroid UK, Butterfly Thyroid Cance.. Please #donate on @JustGiving and RT justgiving.com/crowd…

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10:52 pm · 8th August 2022
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

NEW: UK audit of endocrine departments reveals extent of clinical need for improvements in routine care of those with chronic hypoparathyroidism. We hope this will lead to greater awareness of our needs and a change in practice. Thanks to all involved! onlinelibrary.wiley.…

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12:43 pm · 28th July 2022
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

BALPREET - Living with Primary Hyperpara at 27. youtu.be/TW0gv_UpDlc via @YouTube #ParathyroidDiseaseAwarenessMonthJuly2022 #PHPT #PrimaryHyperparathyroidism pic.twitter.com/njYE…

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7:25 pm · 26th July 2022
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

Drug Shortages: Only One Alpha 0.25mcg capsules or 2mcg drops currently available in UK. #Hypoparathyroidism patients told they ‘can manage a few days without’. They can’t! This medication keeps us alive and must be accessible @Soc_Endo @NHSEngland @NHSScotland @NHSWalesDU

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10:11 am · 20th July 2022
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

'No-one blinked for the whole 8 minutes' said the audience of HCP's after watching this compelling slideshow by patient expert Cleo Conway-Bence at the first Parathyroid Study Day at Cork University Hospital. youtu.be/b3TzMYGK4B0 #ParathyroidAwarenessMonthJuly2022

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2:28 pm · 13th July 2022

Read our quick guide to hypoparathyroidism

All about hyperparathyroidism

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