We are delighted to bring you the results of the ‘Living with Chronic Hypoparathyroidism’ survey which was conducted by Shire, in collaboration with Hypopara UK, on patients with this rare condition.
The report sets out for the first time the extent of the hypopara patient experience in the UK. Findings describe daily challenges ranging from ‘the impact the condition has on patients’ ability to lead a normal life – to work, drive and socialise – to the frequency with which their condition causes them to make an unplanned stay in hospital, or a trip to A&E.’
This new report was met with much interest at the recent SfE BES 2017 conference and we hope it will help lead to greater understanding about the challenges that patients face and which so urgently need addressing.
The report is now available in pdf to download here. To order hard copies please click here to send an email.