This article was published in the Summer 2025 edition of the Society for Endocrinology’s news publication ‘The Endocrinologist.’
TAKING FLIGHT: HYPOPARA BUTTERFLY LAUNCHED ON AWARENESS DAY!
To recognise World Hypopara Day on 1 June 2025, we’re delighted to have launched the completed Seeds of Change Hypopara Butterfly – working in partnership with Ascendis Pharma UK and Parathyroid UK.
Held annually, World Hypopara Day is an important milestone dedicated to raising awareness of the impact of hypoparathyroidism on those living with the condition and the professionals who care for them.
Earlier this year, many of you contributed to the creation of the Hypopara Butterfly, a mural capturing artistic representations of stories and experiences from across the hypopara community. It incorporates insights gathered from endocrinologists who support people living with hypopara: the challenges they face in managing the condition and the hopes for the future of patient care.
The first iteration was revealed at the SfE BES conference 2025 in Harrogate, and we were excited to see the completed mural on show on 1 June.
The Butterfly officially launched on Parathyroid UK’s World Hypopara Day Party Facebook page. The hypopara community and everyone else can view the final mural there, along with the insights built into it.
Go to Seeds of Change to find out more, including how to make a bespoke #MyHypoparaButterfly image and how to repost the original with a personalised caption, to raise awareness.
Seeds of Change is a disease awareness initiative developed by Ascendis Pharma UK Limited and supported by Parathyroid UK and Society for Endocrinology. The words, statements and images on the Hypopara Butterfly have been shaped by lived experiences submitted by the hypopara community.