Hypoparathyroidism is one of many rare diseases. Today we support the annual Rare Disease Day held on the last day of February and join with everyone around the world to highlight the needs of patients living with rare conditions.
Little 4 year old Fianna bounces onto our social media accounts to celebrate the day in her very own way. We want people to understand the teamwork it takes to support a child with a rare disease. Family, doctors, doctors, school, support groups are all involved and it takes care and love and collaboration to manage a rare condition well.
This year we partnered with Media Planet to sponsor The Guardian Rare Diseases supplement and have our banner on the front page.
