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    Hypoparathyroidism

     

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Rare Disease Day 2019

28th February 2019

Read our CEO Liz Glenister’s article about post surgical hypoparathyroidism in The Guardian with a longer version online.

The Guardian’s Rare Diseases 2019 supplement by Mediaplanet UK is out today with more content available online at https://www.healthawareness.co.uk/rare-diseases/hypoparathyroidism-rare-incurable-and-often-caused-by-surgery/

Also find exclusive content from key thought leaders and learn more about rare diseases. #RareDiseases #RareDiseaseDay

Rare diseases affect an estimated 300 million people around the world. There are over 6000 different diseases. So rare’s not so rare after all. Support the rare disease community by showing your rare. With your help, we can raise awareness and increase support for research. Show your rare. Show you care.

ShowYourRare

#ShowYourRare is the interactive social media campaign for Rare Disease Day. You can get involved during the month of February  by painting your face and sharing a photo using the hashtag #ShowYourRare in solidarity with people across the world who are living with a rare disease. How? It’s simple:

1. Paint your face using brightly coloured face paints

2. Pose for a selfie or group photo

3. Post the picture on social media using the hashtags #ShowYourRare and #RareDiseaseDay

We are proud to be affiliated with:

ESE logo

Our information is also endorsed by:

BMA logo
British Thyroid Association
World Hypopara Awareness Day logo

We are members of:

Rare Diseases UK logo
Genetic Alliance UK
National Voices logo

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Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

Delighted to announce that winner of the World Hypopara Day Party prize for best UK post by a child is Amelie-Eve. Congratulations to Amelie met our CEO Liz Glenister last week to receive her giant teddy. We hope you’re enjoying the bear hugs, Amelie! facebook.com/groups/… pic.twitter.com/vaDc…

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4:51 pm · 17th June 2022
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

Hypopara patients from a record 48 countries joined our awareness day party this year! (27 last year.) We had over 3,000 views, reached nearly 7,000 people with posts from people with post surgical, autoimmune, idiopathic, genetic, HDR, PHP, congenital & ADH. #HypoparaDay2022 pic.twitter.com/ONcr…

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4:49 pm · 16th June 2022
Twitter
National Voices
National Voices
@NVTweeting

Today one of our members @ThyroidTrust have released a new T3 Prescribing Report, highlighting the poor access to T3/liothyronine📰 Read the report in full here👉bit.ly/3NM3NOb twitter.com/ThyroidT…

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11:04 am · 14th June 2022 ·
Retweeted by Parathyroid UK
Twitter
Omair Shariq
Omair Shariq
@OmairShariq

John Bilezikian provides an update on upcoming guidelines from the 5th Intl. Workshop on Hyperpara highlighting involvement of multiple groups inc. @TheAAES. Grateful for opportunity to contribute as a (very) Jr. member of the surgical taskforce led by @DrNancyPerrier #ENDO2022 pic.twitter.com/63oE…

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11:44 pm · 12th June 2022 ·
Retweeted by Parathyroid UK
Twitter
Joy Wu
Joy Wu
@JoyYWu

Congratulations to John Wass, MD, MA, FRCP, winner of @TheEndoSociety Outstanding Leadership in Endocrinology Award #ENDO2022 pic.twitter.com/vtIP…

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11:38 pm · 12th June 2022 ·
Retweeted by Parathyroid UK

Read our quick guide to hypoparathyroidism

All about hyperparathyroidism

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