We are very excited to be part of the Media Planet Rare Disease Day campaign launched in The Guardian today!
Our article features world expert Professor Raj Thakker talking about hypoparathyroidism and a new treatment for genetic forms of the condition, and Anna Deason on her experience of being a mother to Fianna who was born with a rare version of this rare disorder.
Click here to read the article.
Awareness opportunities for rare conditions are invaluable and we’d like to thank Media Planet, Prof Thakker, all the parents who submitted their stories, and the Love and Deason families whose fundraising helped to make this project possible.