Vincent’s Story : We bring you the latest news about baby Vincent who has a rare form of a rare form of hypoparathyroidism – read it here.
Parliamentary Receptions: We are delighted to once again be attending a parliamentary reception to highlight Rare Disease day, this time at the House of Commons in London where we will be represented by committee members Isabel Wray da Silva and Jane Compton and Hypopara UK member Nat Usai Fonnesu. read their account in the Spring 2016 newsletter.