We are delighted to inform you that Parathyroid UK is now a Patient Advocacy Group Affiliate Member of the European Society of Endocrinology.
This initiative is an important step which marks the change in attitudes towards a new collaboration of clinicians, societies and patients. It recognises the contribution we can make as well as the support that we can now receive.
The ESE writes that they consider ‘Patient Advocacy Groups (PAG) essential partners in ensuring that patients throughout Europe have access to the best information about their condition as well as to diagnosis and care. ESE considers this a bi-directional process, whereby PAGs can help inform ESE about better integration of the patient perspective in the initiatives of the Society, and ESE aims to work together with, and support PAGs, in their ambitions towards developing information resources, providing access to up-to-date medical information and insights, and by including the patient voice in its policy and advocacy strategies.’
We are very grateful to the ESE for all their work in bringing this to fruition and for recognising the role that patients can play. We hope that it will lead to positive outcomes for all and we are very excited to see what this new era will bring.