Latest News

This year we were excited to be involved in the following events for Rare Disease Day: Press campaign The stories of 3 of our members with different kinds of hypopara were featured in the Mediaplanet-UK… [Read More]

Vincent’s Story : We bring you the latest news about baby Vincent who has a rare form of a rare form of hypoparathyroidism – read it here. Parliamentary Receptions: We are delighted to once again be attending a… [Read More]

Meet Vincent. At 6 weeks old he is our youngest , newest member and has already led a very full life. It turns out that little Vincent has a very rare disease indeed; a rare form… [Read More]