Rare Disease Day 2016
Vincent’s Story : We bring you the latest news about baby Vincent who has a rare form of a rare form of hypoparathyroidism – read it here. Parliamentary Receptions: We are delighted to once again be attending a… [Read More]
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Rare Disease Day 2015
Meet Vincent. At 6 weeks old he is our youngest , newest member and has already led a very full life. It turns out that little Vincent has a very rare disease indeed; a rare form… [Read More]