The first ever study into hypopara patients’ views on parathyroid transplantation is now published. Many thanks to Hypopara UK advisor and surgeon Radu Mihai and Alexander Stevenson, Oxford University, and to everyone who took part in… [Read More]
We’re holding the annual facebook campaign in the World Hypopara Patient Group on June 1st. Last year, hypopara patients from 20 countries all joined in the fun and it was a very emotional day! This year, as… [Read More]
The manufacturers of Sandocal, Glaxo Smith Kline, say that there are currently ‘availability issues ‘ with all Sandocal tablets and they will be out of stock until 10th May. They warn that it may take… [Read More]
We are very excited to be part of the Media Planet Rare Disease Day campaign launched in The Guardian today! Our article features world expert Professor Raj Thakker talking about hypoparathyroidism and a new treatment for genetic forms of the condition, and… [Read More]
THANK YOU to the patients and carers who took part in the International survey on the Burden of Illness Among patients with hypoparathyroidism. The interim abstract and poster will be presented at the European Society… [Read More]
We are delighted to bring you our video about the groundbreaking research on parathyroid stem cells being carried out at Newcastle University by Sebastian Aspinall and his team. Surgeon Mr Aspinall adroitly describes hypoparathyroidism and… [Read More]
Back to Harrogate again for Liz & Bill Genister and Mandy Mainland. Sadly Harriet McLeod ended up in hospital instead and we were sorry not to meet her. The buzz about hypopara and hyperpara was… [Read More]
We are delighted to bring you the results of the ‘Living with Chronic Hypoparathyroidism’ survey which was conducted by Shire, in collaboration with Hypopara UK, on patients with this rare condition. The report sets out for the… [Read More]
We were delighted to be invited to the BAETS annual meeting which held in Belfast. Fiona O’Shea, Aisling Duffy O’Connor and Ray Finlay attended and were present to see Charlotte McIntyre present the results of… [Read More]
We are delighted to announce that our new patient information leaflet about Primary Hyperparathyroidism won ‘Highly Commended’ at the BMA Patient Information Awards in September 2017.
