Congratulations to Ray Finlay, our very own Science Advisor and committee member, whose team at Astra Zeneca have won the Royal Society of Chemistry Malcom Campbell Memorial Award for outstanding contribution to chemistry. The drug they’ve discovered… [Read More]
This year we were excited to be involved in the following events for Rare Disease Day: Press campaign The stories of 3 of our members with different kinds of hypopara were featured in the Mediaplanet-UK… [Read More]
Vincent’s Story : We bring you the latest news about baby Vincent who has a rare form of a rare form of hypoparathyroidism – read it here. Parliamentary Receptions: We are delighted to once again be attending a… [Read More]
Meet Vincent. At 6 weeks old he is our youngest , newest member and has already led a very full life. It turns out that little Vincent has a very rare disease indeed; a rare form… [Read More]
