THANK YOU to the patients and carers who took part in the International survey on the Burden of Illness Among patients with hypoparathyroidism. The interim abstract and poster will be presented at the European Society… [Read More]
We are delighted to bring you our video about the groundbreaking research on parathyroid stem cells being carried out at Newcastle University by Sebastian Aspinall and his team. Surgeon Mr Aspinall adroitly describes hypoparathyroidism and… [Read More]
Back to Harrogate again for Liz & Bill Genister and Mandy Mainland. Sadly Harriet McLeod ended up in hospital instead and we were sorry not to meet her. The buzz about hypopara and hyperpara was… [Read More]
We are delighted to bring you the results of the ‘Living with Chronic Hypoparathyroidism’ survey which was conducted by Shire, in collaboration with Hypopara UK, on patients with this rare condition. The report sets out for the… [Read More]
We were delighted to be invited to the BAETS annual meeting which held in Belfast. Fiona O’Shea, Aisling Duffy O’Connor and Ray Finlay attended and were present to see Charlotte McIntyre present the results of… [Read More]
We are delighted to announce that our new patient information leaflet about Primary Hyperparathyroidism won ‘Highly Commended’ at the BMA Patient Information Awards in September 2017.
Hypopara UK highlights calcium -sensing receptor (CaSR) mutations in the ‘Children’s Health’ supplement by Media Planet UK, which appreared in The Guardian on 26th June 2017. If you missed it you can read Alfie’s story… [Read More]
Hypopara UK was delighted to launch the newly formed Hypopara Europe Network at the ECE in Lisbon in May 2017. It was a momentous occasion. Sharing the Hypopara UK stand, represented by Isabel Wray da… [Read More]
Congratulations to Ray Finlay, our very own Science Advisor and committee member, whose team at Astra Zeneca have won the Royal Society of Chemistry Malcom Campbell Memorial Award for outstanding contribution to chemistry. The drug they’ve discovered… [Read More]
This year we were excited to be involved in the following events for Rare Disease Day: Press campaign The stories of 3 of our members with different kinds of hypopara were featured in the Mediaplanet-UK… [Read More]
