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Latest News

International survey on hypoparathyroidism

18th January 2018

THANK YOU to the patients and carers who took part in the International survey on the Burden of Illness Among patients with hypoparathyroidism. The interim abstract and poster will be presented at the European Society… [Read More]

Video on latest stem cell research

21st November 2017

We are delighted to bring you our video about the groundbreaking research on parathyroid stem cells being carried out at Newcastle University by Sebastian Aspinall and his team. Surgeon Mr Aspinall adroitly describes hypoparathyroidism and… [Read More]

SfE BES conference – Harrogate Nov 2017

21st November 2017

Back to Harrogate again for Liz & Bill Genister and Mandy Mainland. Sadly Harriet McLeod ended up in hospital instead and we were sorry not to meet her.  The buzz about hypopara and hyperpara was… [Read More]

Shire report

Shire ‘quality of life’ report out now

12th November 2017

We are delighted to bring you the results of the ‘Living with Chronic Hypoparathyroidism’ survey which was conducted by Shire, in collaboration with Hypopara UK, on patients with this rare condition. The report sets out for the… [Read More]

BAETS conference – Belfast Oct 2017

21st October 2017

We were delighted to be invited to the BAETS annual meeting which held in Belfast. Fiona O’Shea, Aisling Duffy O’Connor and Ray Finlay attended and were present to see Charlotte McIntyre present the results of… [Read More]

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Primary Hyperparathyroidism leaflet wins BMA award

18th September 2017

We are delighted to announce that our new patient information leaflet about Primary Hyperparathyroidism won ‘Highly Commended’ at the BMA Patient Information Awards in September 2017.

Hypopara UK on CaSR in The Guardian

26th June 2017

Hypopara UK highlights calcium -sensing receptor (CaSR) mutations in the ‘Children’s Health’ supplement by Media Planet UK, which appreared in The Guardian on 26th June 2017. If you missed it you can read Alfie’s story… [Read More]

ECE conference – Lisbon May 2017

21st May 2017

Hypopara UK was delighted to launch the newly formed Hypopara Europe Network at the ECE in Lisbon in May 2017. It was a momentous occasion. Sharing the Hypopara UK stand, represented by Isabel Wray da… [Read More]

RSC Award to our committee member

3rd April 2017

Congratulations to Ray Finlay, our very own Science Advisor and committee member,  whose team at Astra Zeneca have won the Royal Society of Chemistry Malcom Campbell Memorial Award for outstanding contribution to chemistry. The drug they’ve discovered… [Read More]

Rare Disease Day 2017

1st March 2017

This year we were excited to be involved in the following events for Rare Disease Day: Press campaign The stories of 3 of our members with different kinds of hypopara were featured in the Mediaplanet-UK… [Read More]

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