Sandocal – temporarily out of stock
The manufacturers of Sandocal, Glaxo Smith Kline, say that there are currently ‘availability issues ‘ with all Sandocal tablets and they will be out of stock until 10th May. They warn that it may take… [Read More]
Latest News
Rare Disease Day 2018
We are very excited to be part of the Media Planet Rare Disease Day campaign launched in The Guardian today! Our article features world expert Professor Raj Thakker talking about hypoparathyroidism and a new treatment for genetic forms of the condition, and… [Read More]
International survey on hypoparathyroidism
THANK YOU to the patients and carers who took part in the International survey on the Burden of Illness Among patients with hypoparathyroidism. The interim abstract and poster will be presented at the European Society… [Read More]
Video on latest stem cell research
We are delighted to bring you our video about the groundbreaking research on parathyroid stem cells being carried out at Newcastle University by Sebastian Aspinall and his team. Surgeon Mr Aspinall adroitly describes hypoparathyroidism and… [Read More]
SfE BES conference – Harrogate Nov 2017
Back to Harrogate again for Liz & Bill Genister and Mandy Mainland. Sadly Harriet McLeod ended up in hospital instead and we were sorry not to meet her. The buzz about hypopara and hyperpara was… [Read More]
Shire ‘quality of life’ report out now
We are delighted to bring you the results of the ‘Living with Chronic Hypoparathyroidism’ survey which was conducted by Shire, in collaboration with Hypopara UK, on patients with this rare condition. The report sets out for the… [Read More]
BAETS conference – Belfast Oct 2017
We were delighted to be invited to the BAETS annual meeting which held in Belfast. Fiona O’Shea, Aisling Duffy O’Connor and Ray Finlay attended and were present to see Charlotte McIntyre present the results of… [Read More]
Primary Hyperparathyroidism leaflet wins BMA award
We are delighted to announce that our new patient information leaflet about Primary Hyperparathyroidism won ‘Highly Commended’ at the BMA Patient Information Awards in September 2017.
Hypopara UK on CaSR in The Guardian
Hypopara UK highlights calcium -sensing receptor (CaSR) mutations in the ‘Children’s Health’ supplement by Media Planet UK, which appreared in The Guardian on 26th June 2017. If you missed it you can read Alfie’s story… [Read More]
ECE conference – Lisbon May 2017
Hypopara UK was delighted to launch the newly formed Hypopara Europe Network at the ECE in Lisbon in May 2017. It was a momentous occasion. Sharing the Hypopara UK stand, represented by Isabel Wray da… [Read More]