BAETS (The British Association of Endocrine and Thyroid Surgeons) have published a statement on primary hyperparathyroidism to address recent comments on social media. ”Primary hyperparathyroidism is a disease that is common in the UK and… [Read More]
Congratulations to our very own Professor Raj Thakker on being awarded an OBE in the King’s Birthday Honours List for services to ‘Medical Science and to People with Hereditary and Rare Disorders’. Professor Thakker said:… [Read More]
We have a host of events happening to celebrate Hypopara Day this year. The annual online party, of course! Also patient videos, a patient survey and a fundraising event. Read more
On 28th April Ascendis Pharma announced the exciting news that the MHRA had approved their new parathyroid hormone ‘Yorvipath’ specifically as a treatment for chronic hypoparathyroidism in adults in the UK. You can read their… [Read More]
Here is a letter to patients from Amolyt about the acquisition to take place later this year . It explains that the CALYPSO study will continue to operate as planned and physician participants will remain… [Read More]
For all Primary Hyperparathyroidism patients: Please help to get your views known and complete this short survey by 9th February. Radu Mihai, our Medical Advisor and previous President of the British Association of Endocrine &… [Read More]
In November, Mandy Mainland (hypopara) and Caroline Fryer (hyperpara) exhibited at the annual British Endocrine Society conference in Glasgow where we had been invited to speak for the first time about our work and the… [Read More]
In June 2023, Tania Gelmetti, our in-house nutritionist and hypopara patient, undertook a research project for her Master’s degree on symptom management in people with hypoparathyroidism. As far as we know, this is the first… [Read More]
We are delighted to announce that the Calypso trial from Amolyt Pharma has arrived in the UK . For those with chronic hypoparathyroidism, the study will test a new investigational medication, called eneboparatide. Find out… [Read More]
UPDATE – 22nd Nov 2023 – recordings of the webinar are now available in English, French, Spanish and German on the European Society of Endocrinology website or on our You Tube channel. Watch talks and… [Read More]
