Our volunteers Jane Compton and Mary Mwangi attended the Society for Endocrinology NCC meeting today at the Royal Society of Medicine in London. The meeting provides an ideal forum for trainees to present clinical cases… [Read More]
Joy Foster from our Hyperpara was a lay member on the NICE guidelines committee. Thanks to Joy for all her hard work and an excellent job representing hyperpara patients, and to our advisors Prof Neil… [Read More]
Mari Hartgen and Isabel Wray da Silva at the ECE in Lyon, France, in May this year. A very successful meeting.
Read our CEO Liz Glenister’s article about post surgical hypoparathyroidism in The Guardian with a longer version online. The Guardian’s Rare Diseases 2019 supplement by Mediaplanet UK is out today with more content available online at https://www.healthawareness.co.uk/rare-diseases/hypoparathyroidism-rare-incurable-and-often-caused-by-surgery/ Also find exclusive content… [Read More]
‘Is calcium supplementation always needed in patients with hypoparathyroidism?’ Many thanks to authors Dr Al-Sharefi, Liz Glenister, Margaret Morrison and Dr Richard Quinton, to Mari Hartgen and patients who took the time to take part… [Read More]
The first ever study into hypopara patients’ views on parathyroid transplantation is now published. Many thanks to Hypopara UK advisor and surgeon Radu Mihai and Alexander Stevenson, Oxford University, and to everyone who took part in… [Read More]
We’re holding the annual facebook campaign in the World Hypopara Patient Group on June 1st. Last year, hypopara patients from 20 countries all joined in the fun and it was a very emotional day! This year, as… [Read More]
The manufacturers of Sandocal, Glaxo Smith Kline, say that there are currently ‘availability issues ‘ with all Sandocal tablets and they will be out of stock until 10th May. They warn that it may take… [Read More]
We are very excited to be part of the Media Planet Rare Disease Day campaign launched in The Guardian today! Our article features world expert Professor Raj Thakker talking about hypoparathyroidism and a new treatment for genetic forms of the condition, and… [Read More]
THANK YOU to the patients and carers who took part in the International survey on the Burden of Illness Among patients with hypoparathyroidism. The interim abstract and poster will be presented at the European Society… [Read More]
