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    Hypoparathyroidism

     

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Latest News

Presenting ‘The patient perspective on hypoparathyroidism’ to the eECE2021

23rd May 2021

“The Patient’s Voice – Where Patient Experience meets Clinical Science.” Watch the session here This year European Society for Endocrinology (ESE) created an exciting new initiative to allow Patient Groups to be further engaged with… [Read More]

Rare Disease Day 2021

28th February 2021

Hypoparathyroidism is one of many rare diseases. Today we support the annual Rare Disease Day held on the last day of February and join with everyone around the world to highlight the needs of patients… [Read More]

Christmas cards

22nd November 2020

Please support us by buying a pack of Christmas/Greetings cards. This year we bring you a beautiful painting of Holly by botanical artist William de Wilde * of the Chelsea Physic Garden Florilegium Society in… [Read More]

Parathyroid UK attends the SfE BES online conference

22nd November 2020

No getting snowed- in in Harrogate as this year the SfE BES conference was held online and we set up our virtual ‘stand’ for delegates to visit. Liz Glenister and Mandy Mainland spent the week… [Read More]

Video of our CEO speaking at the USA hypopara patient conference 2020

18th November 2020

Our CEO, Liz Glenister, was delighted to be able to speak at the USA Hypopara Association patient conference this year as it was being held online. She talks about the history and work of Parathyroid… [Read More]

USA hypopara patient conference 2020

10th November 2020

The USA hypopara association held their conference online this year which made it accessible to patients all over the world . It was a great success. You can now view some of the recordings of… [Read More]

Patient survey on Covid19 experiences

10th November 2020

Our patient survey on Covid19 experiences has had over 500 responses so far! The survey is for all hypopara and hyperpara members whether you have had Covid19 or not. If you live in the UK or… [Read More]

Listen to our new podcast launched at the e-ECE2020

4th September 2020

National survey of current management of patients with chronic hypoparathyroidism 

22nd July 2020

Calling all endocrinologists! Parathyroid UK and the Society for Endocrinology are supporting Professor Jeremy Turner and  Dr Jian Shen Kiam (Norwich) in this important audit which aims to give a clearer picture of current practice… [Read More]

Donation for calcium home tester trial

4th June 2020

We are delighted to have received a generous donation of £10,000 from the de Laszlo Foundation in London to help sponsor our calcium home tester project. The calcium tester, developed by surgeon Tom Kurzawinski at… [Read More]

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We are proud to be affiliated with:

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Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

Delighted to announce that winner of the World Hypopara Day Party prize for best UK post by a child is Amelie-Eve. Congratulations to Amelie met our CEO Liz Glenister last week to receive her giant teddy. We hope you’re enjoying the bear hugs, Amelie! facebook.com/groups/… pic.twitter.com/vaDc…

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4:51 pm · 17th June 2022
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

Hypopara patients from a record 48 countries joined our awareness day party this year! (27 last year.) We had over 3,000 views, reached nearly 7,000 people with posts from people with post surgical, autoimmune, idiopathic, genetic, HDR, PHP, congenital & ADH. #HypoparaDay2022 pic.twitter.com/ONcr…

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4:49 pm · 16th June 2022
Twitter
National Voices
National Voices
@NVTweeting

Today one of our members @ThyroidTrust have released a new T3 Prescribing Report, highlighting the poor access to T3/liothyronine📰 Read the report in full here👉bit.ly/3NM3NOb twitter.com/ThyroidT…

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11:04 am · 14th June 2022 ·
Retweeted by Parathyroid UK
Twitter
Omair Shariq
Omair Shariq
@OmairShariq

John Bilezikian provides an update on upcoming guidelines from the 5th Intl. Workshop on Hyperpara highlighting involvement of multiple groups inc. @TheAAES. Grateful for opportunity to contribute as a (very) Jr. member of the surgical taskforce led by @DrNancyPerrier #ENDO2022 pic.twitter.com/63oE…

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11:44 pm · 12th June 2022 ·
Retweeted by Parathyroid UK
Twitter
Joy Wu
Joy Wu
@JoyYWu

Congratulations to John Wass, MD, MA, FRCP, winner of @TheEndoSociety Outstanding Leadership in Endocrinology Award #ENDO2022 pic.twitter.com/vtIP…

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11:38 pm · 12th June 2022 ·
Retweeted by Parathyroid UK

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