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    Hypoparathyroidism

     

    Read our Quick Guide to Hypopara

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Our wish for 2022

31st December 2021

We wish you all a hopeful and healthy New Year. With a major national review of endocrinology management out recently and new guidelines on hypo- and hyperparathyroidism soon to be published as well as a patient/clinician collaboration on what the future of endocrinology might look like AND a home tester trial in the offing 2022 is definitely looking brighter for parathyroid patients.

We will be working with other patient groups and the European Society of Endocrinology to further understanding of hypoparathyroidism. We bring you the  words of Andrea Giustina, former President of the ESE, who sums up all our hopes for the future when he tweets:  

“A wish for 2022 is that parathyroids are ALWAYS preserved during thyroid surgery to avoid serious systemic complications due to persistent hypoparathyroidism which is still incredibly thought to be easy to manage with low clinical impact! It is a pleasure and honour to be at your side close to persons with hypoparathyroidism advocating at every level for necessary prevention and optimal management of this severe and invalidating disease. ”   

After so many years of raising awareness about hypopara it means so much to have our plight publicly acknowledged by those few specialists who have truly understood it’s impact. 

We will continue to campaign for better diagnosis and treatment for primary hyperparathyroidism and working, in particular, with GPs to raise awareness. Last month, findings from a huge study on 75 year olds indicated that parathyroidectomy is associated with lower fracture risk among older adults with PHPT and should be considered for this age group.  Guidelines were published this year in Germany and a new consensus statement from Australia has just stated that

Parathyroidectomy is the only definitive treatment and is warranted for all symptomatic patients and should be considered for asymptomatic patients without contraindications to surgery

We hope studies like this will help to finally debunk the long held practice of ‘watch and wait’, replace outdated guidelines.

Our greatest wish for all of us, whether for those living with hypopara for the rest of their lives or those who have been living with undiagnosed hyperpara for many years, is for endocrinologists to take heed, to learn about our conditions, acknowledge our symptoms and work with us to help us gain some quality of life. 

Meanwhile we will continue to support your in our groups, send all our love to those who  have been affected by Covid and wish you all a safe and healthy 2022.

Happy New Year!

 

We are proud to be affiliated with:

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Our information is also endorsed by:

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British Thyroid Association
World Hypopara Awareness Day logo

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Thyroid Journal
Thyroid Journal
@thyroidjournal

The Results Are In! 2022 Top-Read Articles! What is the evidence to support #ActiveSurveillance vs #Thyroid #Surgery for #Thyroidcancer? ow.ly/7Qf350MwZt1 @AngelaLeung9 @Jasosamd @EndocrinologyM @OhioStateMed @hopkins_ent @UCLAHealth @UCSFMedicine #medtwitter #endotwitter pic.twitter.com/Glvt…

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7:28 pm · 24th January 2023 ·
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British Association of Endocrine&Thyroid Surgeons
British Association of Endocrine&Thyroid Surgeons
@BAETS_UK

Spaces still available at the BAETS thyroid & parathyroid masterclass. Provisional programme attached, book a place soon! pic.twitter.com/lG1J…

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2:22 pm · 20th January 2023 ·
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Radu Mihai
Radu Mihai
@RaduMiSurgeon

Looking forward to meeting trainees and Consultants with an interest in endocrine surgery at the annual BAETS masterclass in thyroid-parathyroid surgery due on 6th March in Birmingham. A day of lectures and case-discussions, meeting friends and mentors. pic.twitter.com/d8xD…

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11:03 pm · 12th January 2023 ·
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Parathyroid UK
Parathyroid UK
@ParathyroidUK

pic.twitter.com/Q3fc…

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12:28 am · 22nd December 2022
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Parathyroid UK
Parathyroid UK
@ParathyroidUK

Parathyroids are glands too…. twitter.com/Your_Hor…

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12:42 am · 20th December 2022

Read our quick guide to hypoparathyroidism

All about hyperparathyroidism

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