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New survey: Symptom management in hypoparathyroidism

31st May 2023

We are delighted to invite you to take part in this excellent survey looking at symptom management in people with hypoparathyroidism. It aims to compare symptoms in people who take calcium supplements and those who don’t. If you are a UK resident, please take 20 minutes to complete it as the results will be very interesting for us.

The survey is by our in-house nutritionist and hypopara patient Tania Gelmetti who writes:
“As part of my MSc Human Nutrition Course I am carrying out a research project to look at symptom management in people with hypoparathyroidism. The research includes a survey which will look at symptom frequency and severity in people who take calcium supplements and compare this to those who only use food sources of calcium.

The survey will also look at how much dietary calcium people with hypoparathyroidism are eating and compare this with their symptoms. With this information, it is hoped that we will gain a better understanding of the amount of dietary calcium needed to control symptoms when supplements aren’t taken.

To the best of my knowledge, this is the first study to look specifically at diet in hypoparathyroidism so I am very excited to see the results and look forward to sharing them with you later on this year.”

If you would like to take part in the survey the link can be found here:

https://stmarys.onlinesurveys.ac.uk/hypoparathyroidism-symptom-survey1

Thank you!

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Parathyroid UK
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@ParathyroidUK

Webinar topics : Calcium home tester update, Managing Your Hypopara, the PTH Calypso trial and Hypopara in Children ( including pump use.) twitter.com/parathyr…

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10:30 pm · 12th June 2023
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

Here is the webinar recording of our #Hypopara Info Update 2023 . Huge thanks to our speakers Prof Jeremy Turner, Mr Tom Kurzawinsky, Dr Mark Sumeray & Dr Evelien Gevers. youtu.be/6HbhBd-bXDM @Soc_Endo @baets @ESEndocrinology @IrishEndocrine @AmolytPharma

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1:15 pm · 12th June 2023
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Parathyroid UK
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Tonight 8pm! twitter.com/Parathyr…

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8:10 am · 8th June 2023
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Parathyroid UK
Parathyroid UK
@ParathyroidUK

A poll of worldwide hypopara patients on #HypoparaDay2023 asked “Are you symptomatic today?” 160 responded: 70% YES 29% NO pic.twitter.com/egF1…

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8:34 am · 3rd June 2023
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

We’ll be holding our first #hypopara webinar 8pm on 8th June. Register here us06web.zoom.us/webi… @AmolytPharma @Soc_Endo @ESEndocrinology @IrishEndocrine #HypoparaDay2023 pic.twitter.com/T4RV…

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8:57 am · 2nd June 2023

Read our quick guide to hypoparathyroidism

All about hyperparathyroidism

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