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Natpar Update

1st July 2022

The latest update on the Natpar shortages from Takeda are as follows:

  • 100mcg dose – shortage duration is  now unknown but is expected to last at least 6 months.
    75mcg dose – shortage expected later in 2022

In response to your questions  we can now tell you that :

  • MHRA have sent information regarding latest treatment management to healthcare professionals (HCPs). Ask your endocrinologist about this if you haven’t already spoken to them.
  • Existing patients will have priority regarding continued access to Natpar. However,  Takeda will support new patients if their endocrinologist considers it necessary.
  • Supply of Natpar in the USA and Europe are linked to manufacturing issues but for different reasons. In the USA there was a problem with rubber particles and in Europe the issue is with protein particles. However, ongoing rigorous testing ensures that current doses are safe.

We will keep you informed of any further updates.

 

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Our information is also endorsed by:

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Help Lynn raise £450 to Raise money for Parathyroid UK, Butterfly Thyroid Cance.. Please #donate on @JustGiving and RT justgiving.com/crowd…

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10:52 pm · 8th August 2022
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NEW: UK audit of endocrine departments reveals extent of clinical need for improvements in routine care of those with chronic hypoparathyroidism. We hope this will lead to greater awareness of our needs and a change in practice. Thanks to all involved! onlinelibrary.wiley.…

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12:43 pm · 28th July 2022
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BALPREET - Living with Primary Hyperpara at 27. youtu.be/TW0gv_UpDlc via @YouTube #ParathyroidDiseaseAwarenessMonthJuly2022 #PHPT #PrimaryHyperparathyroidism pic.twitter.com/njYE…

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7:25 pm · 26th July 2022
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Drug Shortages: Only One Alpha 0.25mcg capsules or 2mcg drops currently available in UK. #Hypoparathyroidism patients told they ‘can manage a few days without’. They can’t! This medication keeps us alive and must be accessible @Soc_Endo @NHSEngland @NHSScotland @NHSWalesDU

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10:11 am · 20th July 2022
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'No-one blinked for the whole 8 minutes' said the audience of HCP's after watching this compelling slideshow by patient expert Cleo Conway-Bence at the first Parathyroid Study Day at Cork University Hospital. youtu.be/b3TzMYGK4B0 #ParathyroidAwarenessMonthJuly2022

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2:28 pm · 13th July 2022

Read our quick guide to hypoparathyroidism

All about hyperparathyroidism

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