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Endocrine Academy Report

12th May 2023

This week Parathyroid UK attended the Society for Endocrinology’s Clinical update training programme for recently appointed consultants in diabetes and endocrinology.

It provides an update on current clinical practice and offers delegates an unparalleled opportunity to network with fellow trainees and established Endocrinologists.

At the same time is the clinical update for Endocrine nurses, so attending these events gives us exposure, and the opportunity to speak to the Drs and nurses about the work we do such as supporting patients, providing information to patients and Drs alike, and raising awareness about all parathyroid conditions.

Our stand was very busy, and the new consultants were keen to learn about managing us, and I used every opportunity to discuss what is important to us, such as being able to access blood tests, with results, and how different we all are.

Some patients can feel perfectly comfortable with a calcium of 2.1 mmol/l, while the next person would be happiest around 2.35 mmol/l for example.

We met some specialist endo nurses who run their own clinics and it was heartening to hear that they are on the increase.

The ESE guidelines on the management of Hypopara were on display and many endos were encouraged to print them off using the QR code for our website.

These are the inroads we are making by bringing these matters to their attention, and hopefully another generation of new consultants will take back this knowledge and use it in their clinics to improve their care of us all.

I also listened to an interesting lecture on Hypercalcaemia, run by a very experienced endo who is also one of our advisors, and it was good to hear their discussions on how best to manage these patients.

Another lecture on hypErpara in pregnancy was interesting, and the patient involved had a successful parathyroidectomy in the second trimester with normalisation of calcium and PTH and went on to deliver a healthy baby at term.

The recently published ESE leaflets on  hypErpara in pregnancy were very popular and are available to download from the website ( as are all our leaflets).

Sadly, It has been shown that many of us receive sub standard care in our management, but take heart that our message IS getting out there, and IS making a difference!

Jane Compton
Support Team
April 2023

We are proud to be affiliated with:

ESE logo

Our information is also endorsed by:

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British Thyroid Association
World Hypopara Awareness Day logo

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Parathyroid UK
Parathyroid UK
@ParathyroidUK

Let’s not forget that 75% of patients living with #hypoparathyroidism suffer a double whammy post thyroidectomy when they become hypothyroid AND hypoparathyroid. #WorldThyroidDay2023 twitter.com/physorg_…

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10:22 pm · 25th May 2023
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BTF Thyroid
BTF Thyroid
@britishthyroid

Peri/menopause added to an existing thyroid condition can make it a challenging time for some midlife women. We’ve worked with Prof Annice Mukherjee on some new resources to help Read our article ↘ btf-thyroid.org/thyr… #WorldThyroidDay #menopause #perimenopause #thyroid pic.twitter.com/qIKS…

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10:10 pm · 25th May 2023 ·
Retweeted by Parathyroid UK
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Parathyroid UK
Parathyroid UK
@ParathyroidUK

“The causes of death in 12 patients appeared to be unrelated to HP but we found a high prevalence of chronic organ damages/comorbidities related to it in this group. Less than 25% documented HP correctly in the discharge letters, which indicates a high potential for improvement.” twitter.com/sociedad…

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6:29 am · 18th May 2023
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Parathyroid UK
Parathyroid UK
@ParathyroidUK

The ESE and affiliated patient groups were able to meet online and in person at the #ECE2023 this morning to discuss EDCs, drug shortages and future events. pic.twitter.com/TWAa…

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9:32 pm · 16th May 2023
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Parathyroid UK
Parathyroid UK
@ParathyroidUK

It’s been really encouraging to see so much great work going on into #parathyroids - and to be able to see it all online. Thanks to everyone and to @ESEndocrinology #ECE2023 pic.twitter.com/aMYZ…

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9:21 pm · 16th May 2023

Read our quick guide to hypoparathyroidism

All about hyperparathyroidism

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