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July is Parathyroid Disease Awareness Month

13th July 2022

To mark Awareness Month we have added a new page to the website of patient videos to highlight the challenges of living with Primary Hyperparathyroidism.

First, we bring you a compelling slideshow by patient expert Cleo Conway-Bence in which she describes her diagnosis with Primary Hyperparathyroidism and the impact it has  had on her life. Cleo’s story is part of a presentation she gave to the first Parathyroid Disease Study Day held at Cork University Hospital in Ireland last month where the audience of 78 included endocrinologists, endocrine, general and ENT surgeons, radiologists, radiographers, GPs, nursing and paramedical staff, physician associates, medical and surgical doctors in training, medical and nursing students – everyone  in the area involved in parathyroid management.

Evaluation after the education event included much praise for the content and strong message of Cleo’s presentation during which ‘no-one blinked for the whole 8 minutes’. Calls were made for more patient stories to be included in future meetings and Parathyroid UK was invited to return next year. Well done Cleo!

Our second story reminds us that Primary Hyperparathyroidism doesn’t just affect older people. Made by 27 year old Balpreet it describes the challenges of living with hyperpara, getting a diagnosis and waiting for surgery  – thank you Balpreet!

You can watch both videos here 

If you would like to help raise awareness about this condition by adding your story to this collection of patient experiences please contact us at info@parathyroiduk.org

We are proud to be affiliated with:

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Our information is also endorsed by:

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British Thyroid Association
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Happy #WomensDay to the thousands of amazing women living with horrible #parathyroid conditions and to all the women charity volunteers, NHS staff and society members who support them and work to improve their lives. @Soc_Endo @ESEndocrinology @BAETS_UK

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4:51 pm · 7th March 2023

Read our quick guide to hypoparathyroidism

All about hyperparathyroidism

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