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    Hypoparathyroidism

     

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Latest News

NICE Primary Hyperparathyroidism Guidelines

1st October 2019

Joy Foster from our Hyperpara was a lay member on the NICE guidelines committee. Thanks to Joy for all her hard work and an excellent job representing hyperpara patients, and to our advisors Prof Neil… [Read More]

ECE2019 Lyon

1st October 2019

Mari Hartgen and Isabel Wray da Silva at the ECE in Lyon, France, in May this year. A very successful meeting.

Rare Disease Day 2019

28th February 2019

Read our CEO Liz Glenister’s article about post surgical hypoparathyroidism in The Guardian with a longer version online. The Guardian’s Rare Diseases 2019 supplement by Mediaplanet UK is out today with more content available online at https://www.healthawareness.co.uk/rare-diseases/hypoparathyroidism-rare-incurable-and-often-caused-by-surgery/ Also find exclusive content… [Read More]

First study to query need for calcium supplementation in hypopara

23rd February 2019

‘Is calcium supplementation always needed in patients with hypoparathyroidism?’ Many thanks to authors Dr Al-Sharefi, Liz Glenister, Margaret Morrison and Dr Richard Quinton, to Mari Hartgen and patients who took the time to take part… [Read More]

Parathyroid transplantation – your views

1st July 2018

The first ever study into hypopara patients’ views on parathyroid transplantation is now published. Many thanks to Hypopara UK advisor and surgeon Radu Mihai and Alexander Stevenson, Oxford University, and to everyone who took part in… [Read More]

It’s nearly World Hypopara Day!

2nd April 2018

We’re holding the annual facebook campaign in the World Hypopara Patient Group on June 1st. Last year, hypopara patients from 20 countries all joined in the fun and it was a very emotional day! This year, as… [Read More]

Sandocal – temporarily out of stock

18th March 2018

The manufacturers of Sandocal, Glaxo Smith Kline, say that there are currently ‘availability issues ‘ with all Sandocal tablets and they will be out of stock until 10th May. They warn that it may take… [Read More]

Rare Disease Day 2018

1st March 2018

We are very excited to be part of the Media Planet Rare Disease Day campaign launched in The Guardian today! Our article features world expert Professor Raj Thakker talking about hypoparathyroidism and a new treatment for genetic forms of the condition, and… [Read More]

International survey on hypoparathyroidism

18th January 2018

THANK YOU to the patients and carers who took part in the International survey on the Burden of Illness Among patients with hypoparathyroidism. The interim abstract and poster will be presented at the European Society… [Read More]

Video on latest stem cell research

21st November 2017

We are delighted to bring you our video about the groundbreaking research on parathyroid stem cells being carried out at Newcastle University by Sebastian Aspinall and his team. Surgeon Mr Aspinall adroitly describes hypoparathyroidism and… [Read More]

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