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    Hypoparathyroidism

     

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Latest News

UK National Chronic Hypoparathyroidism Audit

28th July 2022

We are very proud to announce the publication of our UK national audit of endocrine departments which reveals the extent of the clinical need for improvements in the routine care of those with chronic hypoparathyroidism…. [Read More]

July is Parathyroid Disease Awareness Month

13th July 2022

To mark Awareness Month we have added a new page to the website of patient videos to highlight the challenges of living with Primary Hyperparathyroidism. First, we bring you a compelling slideshow by patient expert… [Read More]

Natpar Update

1st July 2022

The latest update on the Natpar shortages from Takeda are as follows: 100mcg dose – shortage duration is  now unknown but is expected to last at least 6 months. 75mcg dose – shortage expected later… [Read More]

Positive results from new hypopara drug

1st June 2022

Great news to see on World Hypopara Awareness Day 2022! ”Amolyt Pharma announces positive results from phase 2a trial of AZP-3601 for the treatment of hypoparathyroidism.”  Read more here https://amolytpharma.com/…/amolyt-pharma-announces…/      

Natpar shortages

30th May 2022

Update 1st July 2022 The latest update on the Natpar shortages from Takeda are as follows: 100mcg dose – shortage duration is  now unknown but is expected to last at least 6 months. 75mcg dose… [Read More]

Our World Hypopara Day campaign launches today

23rd May 2022

Fittingly, we launch our #HypoparaDay2022 campaign today, on #EuropeanHormoneDay. Every day  up to June 1st look out for our short videos made to highlight the lifelong impact of the different types of hypopara which all… [Read More]

European Hormone Day

23rd May 2022

Parathyroid UK supports the first European Hormone Day launched on 23rd May 2022. #HormoneDay2022 “Why do hormones need a dedicated day?” It’s creator, the European Society of Endocrinology, explains:. “Because cancer is Europe’s second greatest… [Read More]

Society for Endocrinology Outstanding Clinical Practitioner Award 2022.

5th May 2022

Congratulations to Professor Karim Meeran who has won the SfE award for Outstanding Clinical Practitioner this year.  Prof Meeran  is Head of Speciality for Endocrinology at Imperial College Healthcare NHS Trust one of the highest… [Read More]

Parathyroid UK affiliated to ESE

23rd February 2022

We are delighted to inform you that Parathyroid UK is  now a Patient Advocacy Group Affiliate Member of the European Society of Endocrinology. This initiative is an important step which marks the change in attitudes… [Read More]

Our wish for 2022

31st December 2021

We wish you all a hopeful and healthy New Year. With a major national review of endocrinology management out recently and new guidelines on hypo- and hyperparathyroidism soon to be published as well as a… [Read More]

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Help Lynn raise £450 to Raise money for Parathyroid UK, Butterfly Thyroid Cance.. Please #donate on @JustGiving and RT justgiving.com/crowd…

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10:52 pm · 8th August 2022
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NEW: UK audit of endocrine departments reveals extent of clinical need for improvements in routine care of those with chronic hypoparathyroidism. We hope this will lead to greater awareness of our needs and a change in practice. Thanks to all involved! onlinelibrary.wiley.…

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12:43 pm · 28th July 2022
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BALPREET - Living with Primary Hyperpara at 27. youtu.be/TW0gv_UpDlc via @YouTube #ParathyroidDiseaseAwarenessMonthJuly2022 #PHPT #PrimaryHyperparathyroidism pic.twitter.com/njYE…

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7:25 pm · 26th July 2022
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Parathyroid UK
Parathyroid UK
@ParathyroidUK

Drug Shortages: Only One Alpha 0.25mcg capsules or 2mcg drops currently available in UK. #Hypoparathyroidism patients told they ‘can manage a few days without’. They can’t! This medication keeps us alive and must be accessible @Soc_Endo @NHSEngland @NHSScotland @NHSWalesDU

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10:11 am · 20th July 2022
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Parathyroid UK
Parathyroid UK
@ParathyroidUK

'No-one blinked for the whole 8 minutes' said the audience of HCP's after watching this compelling slideshow by patient expert Cleo Conway-Bence at the first Parathyroid Study Day at Cork University Hospital. youtu.be/b3TzMYGK4B0 #ParathyroidAwarenessMonthJuly2022

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2:28 pm · 13th July 2022

Read our quick guide to hypoparathyroidism

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