World Hypopara Awareness Day
World Hypopara Awareness Day is an annual global awareness and education event, held on 1st June. It’s the biggest day of our year! Find out more about World Hypopara Awareness Day and how you can… [Read More]
Latest News
Coronavirus and parathyroid conditions FAQs
In response to the many questions about how the coronavirus may affect people with parathyroid conditions we have compiled these answers with the advice of our medical advisors. General advice Always follow the advice from… [Read More]
SfE National Clinical Cases 12/3/20
Our volunteers Jane Compton and Mary Mwangi attended the Society for Endocrinology NCC meeting today at the Royal Society of Medicine in London. The meeting provides an ideal forum for trainees to present clinical cases… [Read More]
NICE Primary Hyperparathyroidism Guidelines
Joy Foster from our Hyperpara was a lay member on the NICE guidelines committee. Thanks to Joy for all her hard work and an excellent job representing hyperpara patients, and to our advisors Prof Neil… [Read More]
ECE2019 Lyon
Mari Hartgen and Isabel Wray da Silva at the ECE in Lyon, France, in May this year. A very successful meeting.
Rare Disease Day 2019
Read our CEO Liz Glenister’s article about post surgical hypoparathyroidism in The Guardian with a longer version online. The Guardian’s Rare Diseases 2019 supplement by Mediaplanet UK is out today with more content available online at https://www.healthawareness.co.uk/rare-diseases/hypoparathyroidism-rare-incurable-and-often-caused-by-surgery/ Also find exclusive content… [Read More]
First study to query need for calcium supplementation in hypopara
‘Is calcium supplementation always needed in patients with hypoparathyroidism?’ Many thanks to authors Dr Al-Sharefi, Liz Glenister, Margaret Morrison and Dr Richard Quinton, to Mari Hartgen and patients who took the time to take part… [Read More]
Parathyroid transplantation – your views
The first ever study into hypopara patients’ views on parathyroid transplantation is now published. Many thanks to Hypopara UK advisor and surgeon Radu Mihai and Alexander Stevenson, Oxford University, and to everyone who took part in… [Read More]
It’s nearly World Hypopara Day!
We’re holding the annual facebook campaign in the World Hypopara Patient Group on June 1st. Last year, hypopara patients from 20 countries all joined in the fun and it was a very emotional day! This year, as… [Read More]
Sandocal – temporarily out of stock
The manufacturers of Sandocal, Glaxo Smith Kline, say that there are currently ‘availability issues ‘ with all Sandocal tablets and they will be out of stock until 10th May. They warn that it may take… [Read More]