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    Hypoparathyroidism

     

    Read our Quick Guide to Hypopara

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    What is hypopara?

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    • A quick guide to hypopara
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Latest News

Conference Reports 2022

29th November 2022

Society for Endocrinology (SfE) Endocrine Academy Birmingham, April 2022 Jane & Steve Compton Jane writes: We had a brisk and busy first day with lots of interest in our leaflets and our poster below: ‘How… [Read More]

Hypopara Patient Forum summary

3rd November 2022

The European Society for Endocrinology (ESE) have produced an excellent poster summarising data from the 1st Hypoparathyroidism Patient Forum – summary, a major global event which was held online in March and presented by patient… [Read More]

National audit on hypopara published

2nd November 2022

Our national audit on the management of chronic hypoparathyroidism is now out now in print, in the latest issue of Clinical Endocrinology. Findings show a clear need for improvement, supporting the findings of the GIRFT… [Read More]

Positive results on new drug from Amolyt

2nd November 2022

Amolyt Pharma have announced positive results from the second patient cohort of their Phase 2a Clinical Trial investigating AZP-3601 as a potential treatment for hypoparathyroidism . Amolyt say “We’re excited to be one step closer… [Read More]

BAETS 2022

2nd November 2022

We were delighted to attend BAETS 2022 in person at last. Huge thanks to our two fantastic volunteers Lucy Weigall and Caroline Dow who spent two days representing hypopara and hyperpara patients at the British… [Read More]

Natpar to be discontinued

2nd November 2022

Oct 4th 2022. Takeda will be discontinuing Natpar globally at the end of 2024. Supply for current patients will be maintained until then and beyond until stock is depleted. Having worked since 2009 to get… [Read More]

Parathyroid UK publicises One Alpha shortages

27th September 2022

Today, in The Guardian ‘Rare Disease’ section, we call for action on the current shortage of One Alpha.  Here it is in full in case you missed it. Many thanks to all our medical advisors,… [Read More]

Shortages of One Alpha

20th September 2022

Following reports from members of difficulty accessing One Alpha (Alfacalcidol) medication we have circulated the following information regarding temporary shortages due to problems with manufacturing supply. We can’t say exactly when these will be resolved… [Read More]

UK National Chronic Hypoparathyroidism Audit

28th July 2022

We are very proud to announce the publication of our UK national audit of endocrine departments which reveals the extent of the clinical need for improvements in the routine care of those with chronic hypoparathyroidism…. [Read More]

July is Parathyroid Disease Awareness Month

13th July 2022

To mark Awareness Month we have added a new page to the website of patient videos to highlight the challenges of living with Primary Hyperparathyroidism. First, we bring you a compelling slideshow by patient expert… [Read More]

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Thyroid Journal
Thyroid Journal
@thyroidjournal

The Results Are In! 2022 Top-Read Articles! What is the evidence to support #ActiveSurveillance vs #Thyroid #Surgery for #Thyroidcancer? ow.ly/7Qf350MwZt1 @AngelaLeung9 @Jasosamd @EndocrinologyM @OhioStateMed @hopkins_ent @UCLAHealth @UCSFMedicine #medtwitter #endotwitter pic.twitter.com/Glvt…

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7:28 pm · 24th January 2023 ·
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British Association of Endocrine&Thyroid Surgeons
British Association of Endocrine&Thyroid Surgeons
@BAETS_UK

Spaces still available at the BAETS thyroid & parathyroid masterclass. Provisional programme attached, book a place soon! pic.twitter.com/lG1J…

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2:22 pm · 20th January 2023 ·
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Radu Mihai
Radu Mihai
@RaduMiSurgeon

Looking forward to meeting trainees and Consultants with an interest in endocrine surgery at the annual BAETS masterclass in thyroid-parathyroid surgery due on 6th March in Birmingham. A day of lectures and case-discussions, meeting friends and mentors. pic.twitter.com/d8xD…

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11:03 pm · 12th January 2023 ·
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Parathyroid UK
Parathyroid UK
@ParathyroidUK

pic.twitter.com/Q3fc…

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12:28 am · 22nd December 2022
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Parathyroid UK
Parathyroid UK
@ParathyroidUK

Parathyroids are glands too…. twitter.com/Your_Hor…

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12:42 am · 20th December 2022

Read our quick guide to hypoparathyroidism

All about hyperparathyroidism

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