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The national voice for people living with parathyroid conditions

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  • Hypoparathyroidism

    Hypoparathyroidism

     

    Read our Quick Guide to Hypopara

    Suspect you have hypopara?

    Recently been diagnosed with hypopara?

    Find out more about hypopara

    What is hypopara?

    Causes of hypopara

    Diagnosis of hypopara

    Symptoms of hypopara

    Treatment of hypopara

    Related reading

    Thyroid cancer

    Thyroid surgery

    Related conditions

    CaSR

    • A quick guide to hypopara
    • Suspect you have hypopara?
    • Recently been diagnosed?
    • Causes
    • Diagnosis
    • Symptoms
    • Current Treatment
    • New Treatments
    • Thyroid cancer
    • What you should know before – and after – thyroid surgery
    • Calcium-sensing Receptor (CaSR)
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  • Living with Hypopara
    • Get support
    • Self Help Guide
      • Understanding the basics
      • How to manage your calcium levels – practical steps
      • Understanding your tests
      • Understanding your medication
      • Diet in Hypoparathyroidism : general guidance
        • Diet in Hypoparathyroidism Part 1 : Calcium
        • Diet in Hypoparathyroidism Part 2 : Phosphate
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      • What else can I do to help myself?
    • For Women
      • Your hormones and calcium
      • For our hypopara mums
      • Your pregnancy, birth & breastfeeding journey
    • For Parents
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      • My baby has hypoparathyroidism
      • Looking after children with Hypopara
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  • Hyperparathyroidism
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    • Hyperpara Patient Videos
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    • For Endocrine Nurses
    • For GPs
      • Managing hypoparathyroidism for GPs
      • Guidance for GPs : Managing primary hyperparathyroidism
      • Guidance for GPs : Managing primary hyperparathyroidism
  • Clinical Trials
    • About Clinical Trials
    • Current Trials
      • Calypso Trial
      • NIFTy trial

Become a member

Join us today…membership is free…just fill in the form below.

Joining us is one of the best ways to make a real difference to your life and the lives of everyone living with a parathyroid condition.

Find support and friendship in our community of people living with a parathyroid condition. Life with a rare or hidden disease can be challenging and isolating  so you will no longer feel alone. Meet others online or face to face in our regional groups who understand exactly what you’re going through.

Get advice and information from our website, facebook groups, regional groups, telephone helpline. Learn how to  manage your condition and stay healthy whilst living with your parathyroid condition.Our private Support Groups on facebook are a great way to join our parathyroid family, ask questions and feel understood. Drop in any time!

Help strengthen our collective voice and be part of a positive force for change. Did you know ….people with hypopara and hyperpara are still regularly undiagnosed, misdiagnosed and poorly managed? We campaign to raise awareness about parathyroid conditions and get better treatment so the larger our membership the stronger our voice. Already we have made a huge difference but we still have a way to go.

Find out about clinical trials and new treatments and take part in studies and you will be an important part of a national charity dedicated to helping people affected by parathyroid conditions. Opt to receive the latest news in our facebook groups and newsletter.

Get involved. If you can donate or make a small monthly payment or offer some time as a volunteer you will help us continue with our vital work to advance the understanding of parathyroid conditions as well as raising awareness among doctors and the wider community and helping to make sure people get the best treatment.

Just fill  in the form below and choose your preferences – we look forward to meeting you!

 

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  • About you

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    You will be able to easily unsubscribe from our emails at any time. We will never pass your data on to a third-party.
  • Would you like an invitation to one of our members-only Facebook Support Groups?
  • Let us know the email address that your Facebook account is registered with. When you receive your invitation please click the ‘Join Group’ link in the email and again in the Facebook group to be approved.
  • Other groups you can join (no membership required – just request to join):

    • Hypopara Europe Network Group
    • World Hypopara Patient Group
  • If you would like to join a regional Parathyroid UK group then please select your local region here. The group co-ordinator will get in touch with you by email.
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  • Please support our work.

    We are run entirely by volunteers who are committed to supporting you, providing free, up to date, reliable information and the knowledge you need to live well. We are involved in new research to bring about better treatments and we work closely with healthcare professionals to increase understanding of our unmet needs. Your support ensures that we can continue this work and provide advice and information when you need it most. If you find our advice useful please consider making a small donation - it will make a big difference. Thank you.
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We are proud to be affiliated with:

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Our information is also endorsed by:

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British Thyroid Association
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We are members of:

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Genetic Alliance UK
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Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

Webinar topics : Calcium home tester update, Managing Your Hypopara, the PTH Calypso trial and Hypopara in Children ( including pump use.) twitter.com/parathyr…

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10:30 pm · 12th June 2023
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

Here is the webinar recording of our #Hypopara Info Update 2023 . Huge thanks to our speakers Prof Jeremy Turner, Mr Tom Kurzawinsky, Dr Mark Sumeray & Dr Evelien Gevers. youtu.be/6HbhBd-bXDM @Soc_Endo @baets @ESEndocrinology @IrishEndocrine @AmolytPharma

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1:15 pm · 12th June 2023
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

Tonight 8pm! twitter.com/Parathyr…

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8:10 am · 8th June 2023
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

A poll of worldwide hypopara patients on #HypoparaDay2023 asked “Are you symptomatic today?” 160 responded: 70% YES 29% NO pic.twitter.com/egF1…

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8:34 am · 3rd June 2023
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

We’ll be holding our first #hypopara webinar 8pm on 8th June. Register here us06web.zoom.us/webi… @AmolytPharma @Soc_Endo @ESEndocrinology @IrishEndocrine #HypoparaDay2023 pic.twitter.com/T4RV…

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8:57 am · 2nd June 2023

Read our quick guide to hypoparathyroidism

All about hyperparathyroidism

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