Call for endocrinologists
National Survey of current management of patients with chronic hypoparathyroidism
Parathyroid UK and the Society for Endocrinology are supporting Professor Jeremy Turner and Dr Jian Shen Kiam (Norwich) in this important audit. It aims to give a clearer picture of current practice and hopefully inform a future management protocol. We would be enormously grateful if you (or a colleague) could complete the survey and share it far and wide we would be enormously grateful. The data collection tool is available in pdf format ( attached) or online here: https://www.surveymonkey.co.uk/r/K3RTWFC
Guidelines
COVID-19 Guidance for management of hypoparathyroidism and primary hyperparathyroidism
Endocrinology in the time of Covid-19: Management of calcium metabolic disorders and osteoporosis
COVID-19 SfE resources for managing endocrine conditions
Coronavirus and parathyroid conditions FAQs
Template letter to give to your patients with hypoparathyroidism
SfE Emergency Guidance for Hypocalcaemia & Hypercalcaemia
Emergency Guidance for Acute Hypocalaemia
Emergency Guidance for Acute Hypercalcaemia
NICE guidelines on Primary Hyperparathyroidism May 2019
ESE Clinical Guideline: Treatment of Chronic Hypoparathyroidism July 2015.
BAETS Post Thyroidectomy Hypocalcaemia Guidelines
Data from the UK Registry of Endocrine and Thyroid Surgery (www.baets.org.uk/audit) shows that post thyroidectomy hypocalcaemia rates can reach 27%.
Leaflet Orders
Download or order our Patient information leaflets.
All our leaflets are available for clinics to order and are sent out free of charge.
To order, please email Heather with your details or fill in our online order form and return to her by email or to Parathyroid UK, 40 Old London Road, Hythe, KENT, CT21 DQ.
Endocrine Nurses: We are always at the SfE Endocrine Nurses Update and the BES. We’d love to see you at our stand! How can we help you? Please get in touch
Research
Are you planning a new study? We have a database of over 2,500 willing participants. Please get in touch with Liz Glenister if you are interested.
You might be interested in our Research Collection of hypopara and hyperpara studies.
Is calcium supplementation always needed in patients with hypoparathyroidism? The first study to query the need for calcium supplements in hypopara patients.
Patient experience and case studies
Our Patient Stories provide first-hand testimonies of people living with the condition, and help raise awareness about the difficulties of living with different types of hypoparathyroidism, CaSR and hyperparathyroidism. These were the first stories about the patient experience of hypoparathyroidism ever to be published.
Our ‘Living with chronic hypoparathyroidism‘ booklet presents the data of the first UK wide survey of 240 hypopara patients (see bottom of page).
Resources for GPs
- Read our guide to Managing calcium levels for doctors.
- Looking to refer a patient? See our list of Medical Advisors.
I have realised how difficult it must be for patients to continue to trust their doctors when faced with chronic illness.
