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Hannah

Hannah was diagnosed with hypoparathyroidism in her teens and needs weekly calcium infusions. Alongside working hard as a student nurse, she took part in the physically demanding Colour Obstacle Rush to raise money for Hypopara UK. She also manages to travel to faraway places –  she recently went to Florida!


I was diagnosed with hypoparathyroidism when I was 16 years old and since then I have received weekly calcium infusions. I was told I wouldn’t be able to travel, but I have now worked out a regime with the help of my consultant which allows me to go on one holiday each year for up to two weeks which has made a huge difference!!

Hannah completed the ‘Colour Obstacle Rush’ for Hypopara UK

 

The first holiday I tried was Spain five years ago. Since then I have been to Disneyland Paris, Vienna (Austria), New York and Florida. Being able to go on holiday has given me the chance to have a normal life for a couple of weeks and feeling well! I have been able to see places I never thought I would and I am too busy enjoying myself to worry if my levels are going to suddenly drop – but if levels do drop I just take it as it comes and manage it myself and go the hospital if I need to (that’s why you get good travel insurance!)

You only have one life – see everything you want to and don’t let this condition take over!

Getting travel insurance has never been a problem for me, although I do pay more due to my other health problems. The company I regularly use is called OK To Travel. It covers preexisting conditions and is reasonably priced and reliable. I am a student nurse currently doing 37.5 hours a week on placement (including nights) plus two days at the hospital per week so knowing I have a holiday to look forward to gives me the motivation to carry on.

I would urge everyone to try and go away when they can even if it’s just for a short break. A stress-free environment for a short while really does make a difference. You only have one life – see everything you want to and don’t let this condition take over!

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Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

Delighted to announce that winner of the World Hypopara Day Party prize for best UK post by a child is Amelie-Eve. Congratulations to Amelie met our CEO Liz Glenister last week to receive her giant teddy. We hope you’re enjoying the bear hugs, Amelie! facebook.com/groups/… pic.twitter.com/vaDc…

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4:51 pm · 17th June 2022
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

Hypopara patients from a record 48 countries joined our awareness day party this year! (27 last year.) We had over 3,000 views, reached nearly 7,000 people with posts from people with post surgical, autoimmune, idiopathic, genetic, HDR, PHP, congenital & ADH. #HypoparaDay2022 pic.twitter.com/ONcr…

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4:49 pm · 16th June 2022
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National Voices
National Voices
@NVTweeting

Today one of our members @ThyroidTrust have released a new T3 Prescribing Report, highlighting the poor access to T3/liothyronine📰 Read the report in full here👉bit.ly/3NM3NOb twitter.com/ThyroidT…

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11:04 am · 14th June 2022 ·
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Omair Shariq
Omair Shariq
@OmairShariq

John Bilezikian provides an update on upcoming guidelines from the 5th Intl. Workshop on Hyperpara highlighting involvement of multiple groups inc. @TheAAES. Grateful for opportunity to contribute as a (very) Jr. member of the surgical taskforce led by @DrNancyPerrier #ENDO2022 pic.twitter.com/63oE…

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11:44 pm · 12th June 2022 ·
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Joy Wu
Joy Wu
@JoyYWu

Congratulations to John Wass, MD, MA, FRCP, winner of @TheEndoSociety Outstanding Leadership in Endocrinology Award #ENDO2022 pic.twitter.com/vtIP…

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11:38 pm · 12th June 2022 ·
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