• Skip to primary navigation
  • Skip to main content
  • Skip to footer
Parathyroid UK Homepage

The national voice for people living with parathyroid conditions

Helpline 01342 324091
  • Donate
  • About us
    • Our Teams
      • Board of Trustees
      • CEO & Management Committee
      • Support Team
    • Our Medical Advisors
    • Our Sponsors
    • Our history
    • Annual reports
    • Contact Us
  • Shop
  • News
    • Latest News
    • Newsletters
  • Home
  • Hypoparathyroidism

    Hypoparathyroidism

     

    Read our Quick Guide to Hypopara

    Suspect you have hypopara?

    Recently been diagnosed with hypopara?

    Find out more about hypopara

    What is hypopara?

    Causes of hypopara

    Diagnosis of hypopara

    Symptoms of hypopara

    Treatment of hypopara

    Related reading

    Thyroid cancer

    Thyroid surgery

    Related conditions

    CaSR

    • A quick guide to hypopara
    • Suspect you have hypopara?
    • Recently been diagnosed?
    • Causes
    • Diagnosis
    • Symptoms
    • Current Treatment
    • New Treatments
    • Thyroid cancer
    • What you should know before – and after – thyroid surgery
    • Calcium-sensing Receptor (CaSR)
    • Related conditions
  • Living with Hypopara
    • Get support
    • Self Help Guide
      • Understanding the basics
      • How to manage your calcium levels – practical steps
      • Understanding your tests
      • Understanding your medication
      • Diet in Hypoparathyroidism : general guidance
        • Diet in Hypoparathyroidism Part 1 : Calcium
        • Diet in Hypoparathyroidism Part 2 : Phosphate
      • Exercise
      • Employment and Benefits
      • What else can I do to help myself?
    • For Women
      • Your hormones and calcium
      • For our hypopara mums
      • Your pregnancy, birth & breastfeeding journey
    • For Parents
      • Fertility and starting a family
      • My baby has hypoparathyroidism
      • Looking after children with Hypopara
    • Emergency ID items
    • Patient stories
    • Hypopara patient videos
    • Hypopara patient podcasts
  • Hyperparathyroidism
    • Support
    • Your parathyroid glands
    • Primary Hyperparathyroidism
    • Secondary Hyperparathyroidism
    • Tertiary Hyperparathryoidism
    • Parathyroid cancer
    • Hyperpara Patient Videos
    • Patient stories
  • Support us
    • Donate
    • Fundraise for us
    • Sponsor a fundraiser
    • World Hypopara Day June 1st
      • World Hypopara Day 2022
      • World Hypopara Day 2021
    • Volunteer
    • Buy a Gift
  • Patients
    • Become a member
    • Join a Support Group
    • Patient information leaflets & other publications
    • Guidelines
    • Emergency ID items
    • Find a Doctor
    • Useful links for patients
    • Hypopara organisations around the world
  • Join us
  • Medical Professionals
    • Our Medical Advisors
    • Guidelines
    • Clinical trials & key research
    • Order resources
    • Learning resources for healthcare professionals
      • Hypoparathyroidism for professionals
      • Key Research on Hypoparathyroidism
      • Hyperparathyroidism
      • Key Research on Primary Hyperparathyroidism
      • Patients’ lived experiences
    • For Endocrine Nurses
    • For GPs
      • Managing hypoparathyroidism for GPs
      • Guidance for GPs : Managing primary hyperparathyroidism
      • Guidance for GPs : Managing primary hyperparathyroidism
  • Clinical Trials
    • About Clinical Trials
    • Current clinical trials & studies
  • Get support
  • Self Help Guide
  • For Women
  • For Parents
  • Emergency ID items
  • Patient stories
  • Hypopara patient videos
  • Hypopara patient podcasts

Self Help Guide

Living with  lifelong hypopara can be challenging but educating yourself about your condition will help you to feel back in control. Learn how to manage your levels, feel better and get healthier so you can lead the best life you can.

Do you know….

  • which factors can affect your calcium level?
  • when and how to take your medication?
  • what that ‘inner trembling’ means?
  • why you feel so anxious?
  • who to talk to?

This practical guide will explain everything you need to know to help you manage this confusing condition and keep your calcium levels as stable as possible. It has been compiled using advice from our medical advisors, from research and relevant articles and from our own proven experiences over many years as patients. It offers invaluable information that has never been published before.

This site is an absolute life saver for people with this debilitating condition.

It is run by a totally selfless woman, Liz Glenister, who lends invaluable support to us all, giving helpful and useful advice at all times, despite suffering greatly herself.

I don’t know how she does it but she inspires us all to achieve as much as we can, and for that I am extremely grateful.

Jane, Facebook Group member Join up today

When you’ve read the guide, sign up as a member to keep updated with research and news. You will also be invited to join our ‘open all hours’, friendly and caring Facebook support group where you can ask all the questions you want, receive lifelong support, offload your troubles in a safe and private place, make friends, have a laugh with people who ‘get it’ and drop in for instant advice if problems arise. We look forward to meeting you!

 


In this section:

Understanding the basics

How to manage your calcium levels – practical steps

Understanding your tests

Understanding your medication

Diet in Hypoparathyroidism : general guidance

Exercise

Employment and Benefits

What else can I do to help myself?

We are proud to be affiliated with:

ESE logo

Our information is also endorsed by:

BMA logo
British Thyroid Association
World Hypopara Awareness Day logo

We are members of:

Rare Diseases UK logo
Genetic Alliance UK
National Voices logo

Footer

Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

Webinar topics : Calcium home tester update, Managing Your Hypopara, the PTH Calypso trial and Hypopara in Children ( including pump use.) twitter.com/parathyr…

reply retweet favourite
10:30 pm · 12th June 2023
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

Here is the webinar recording of our #Hypopara Info Update 2023 . Huge thanks to our speakers Prof Jeremy Turner, Mr Tom Kurzawinsky, Dr Mark Sumeray & Dr Evelien Gevers. youtu.be/6HbhBd-bXDM @Soc_Endo @baets @ESEndocrinology @IrishEndocrine @AmolytPharma

reply retweet favourite
1:15 pm · 12th June 2023
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

Tonight 8pm! twitter.com/Parathyr…

reply retweet favourite
8:10 am · 8th June 2023
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

A poll of worldwide hypopara patients on #HypoparaDay2023 asked “Are you symptomatic today?” 160 responded: 70% YES 29% NO pic.twitter.com/egF1…

reply retweet favourite
8:34 am · 3rd June 2023
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

We’ll be holding our first #hypopara webinar 8pm on 8th June. Register here us06web.zoom.us/webi… @AmolytPharma @Soc_Endo @ESEndocrinology @IrishEndocrine #HypoparaDay2023 pic.twitter.com/T4RV…

reply retweet favourite
8:57 am · 2nd June 2023

Read our quick guide to hypoparathyroidism

All about hyperparathyroidism

Parathyroid UK
6 The Meads
East Grinstead
West Sussex
RH19 4DF

Contact us

Helpline: 01342 324091

© 2023 Parathyroid UK · All Rights Reserved · Privacy · Disclaimer · Site by Charity & Biscuits.