We are very proud to have supported many pioneers on their journey to becoming parents at a time when there was no information or research into pregnancy in parathyroid conditions at all.
Today, thanks to our campaigning we are very pleased to see much needed research taking place at at last and the first ever information leaflet being produced for patients with parathyroid disorders. It was written by PARAT (the European Society for Endocrinology educational programme on parathyroid disorders) in 2022.
Preconception, Pregnancy and Lactation patient guide
PARAT also published recommendations for healthcare professionals
We are very grateful to Dr Aliya Khan in Canada who published the first recommendations on Hypoparathyroidism and pregnancy in 2019.
Hypoparathyroidism in pregnancy: review and evidence-based recommendations for management Aliya A Khan et al, EJE Vol 180, Issue 2, Feb 2019, Pages R37–R44
If you’re just starting out, do come and join us. You can read some patient experiences here and if you’d like to add your story just let us know.