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The national voice for people living with parathyroid conditions

Hypopara Helpline 01342 316315
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  • Hypoparathyroidism

    Hypoparathyroidism

     

    Read our Quick Guide to Hypopara

    Suspect you have hypopara?

    Find out more about hypopara

    What is hypopara?

    Causes of hypopara

    Diagnosis of hypopara

    Symptoms of hypopara

    Treatment of hypopara

    Related reading

    Thyroid cancer

    Thyroid surgery

    Related conditions

    CaSR

    • A quick guide to hypopara
    • Suspect you have hypopara?
    • Causes
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  • Living with Hypopara
    • Recently been diagnosed?
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    • Self Help Guide for people with Hypopara
      • Understanding the basics
      • How to manage your calcium levels – practical steps
      • Understanding your tests
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Living with hypopara

Over the years our members have developed a wealth of experience in learning to live with hypopara.

Some of the accumulated advice and wisdom is shared on this site. If you haven’t already joined Hypopara UK as a member, we highly recommend doing so.

(This is for people who’ve known they have hypopara for quite a while)

  • Membership – Become a member, or renew your membership/donate.
    Get involved in the Facebook Groups – lend some support to people on there who have only recently been diagnosed
  • Diet / lifestyle – Links to pages here that have tips in?
  • Calcium levels fluctuate all the time. Very hard to manage condition well all the time, over many years.
  • Advice for special circumstances – links to pages
    – Pregnancy/Planning a family
    – Menopause?
    – Children/parents/teenagers
    – Travel – insurance, plane journeys can exacerbate condition for some reason
    – Other conditions – can be complicated by other renal, bone, eye conditions which are also calcium-related? 
  • Latest treatment / research news (4 or 5 a year) / Clinical trials. Big clinical trial should be announced soon.
  • Treatment options – Not sure you are getting the best treatment? Maybe we can recommend a more specialist one near you.

Share your story

If you'd like to share your experience we may want to add it to a relevant page on this site. Please keep your submission limited to 2 or 3 sentences.
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Parathyroid UK
6 The Meads
East Grinstead
West Sussex
RH19 4DF

Contact us

Hypopara Helpline: 01342 316315

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Read our quick guide to hypoparathyroidism

All about hyperparathyroidism

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