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The national voice for people living with parathyroid conditions

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  • Hypoparathyroidism

    Hypoparathyroidism

     

    Read our Quick Guide to Hypopara

    Suspect you have hypopara?

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    Find out more about hypopara

    What is hypopara?

    Causes of hypopara

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    • A quick guide to hypopara
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      • Understanding the basics
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    • For Women
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Living with hypopara

Over the years our members have developed a wealth of experience in learning to live with hypopara.

Some of the accumulated advice and wisdom is shared on this site. If you haven’t already joined Hypopara UK as a member, we highly recommend doing so.

(This is for people who’ve known they have hypopara for quite a while)

  • Membership – Become a member, or renew your membership/donate.
    Get involved in the Facebook Groups – lend some support to people on there who have only recently been diagnosed
  • Diet / lifestyle – Links to pages here that have tips in?
  • Calcium levels fluctuate all the time. Very hard to manage condition well all the time, over many years.
  • Advice for special circumstances – links to pages
    – Pregnancy/Planning a family
    – Menopause?
    – Children/parents/teenagers
    – Travel – insurance, plane journeys can exacerbate condition for some reason
    – Other conditions – can be complicated by other renal, bone, eye conditions which are also calcium-related? 
  • Latest treatment / research news (4 or 5 a year) / Clinical trials. Big clinical trial should be announced soon.
  • Treatment options – Not sure you are getting the best treatment? Maybe we can recommend a more specialist one near you.

Share your story

If you'd like to share your experience we may want to add it to a relevant page on this site. Please keep your submission limited to 2 or 3 sentences.
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We are proud to be affiliated with:

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Our information is also endorsed by:

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We are members of:

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Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

Help Lynn raise £450 to Raise money for Parathyroid UK, Butterfly Thyroid Cance.. Please #donate on @JustGiving and RT justgiving.com/crowd…

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10:52 pm · 8th August 2022
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

NEW: UK audit of endocrine departments reveals extent of clinical need for improvements in routine care of those with chronic hypoparathyroidism. We hope this will lead to greater awareness of our needs and a change in practice. Thanks to all involved! onlinelibrary.wiley.…

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12:43 pm · 28th July 2022
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

BALPREET - Living with Primary Hyperpara at 27. youtu.be/TW0gv_UpDlc via @YouTube #ParathyroidDiseaseAwarenessMonthJuly2022 #PHPT #PrimaryHyperparathyroidism pic.twitter.com/njYE…

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7:25 pm · 26th July 2022
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

Drug Shortages: Only One Alpha 0.25mcg capsules or 2mcg drops currently available in UK. #Hypoparathyroidism patients told they ‘can manage a few days without’. They can’t! This medication keeps us alive and must be accessible @Soc_Endo @NHSEngland @NHSScotland @NHSWalesDU

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10:11 am · 20th July 2022
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

'No-one blinked for the whole 8 minutes' said the audience of HCP's after watching this compelling slideshow by patient expert Cleo Conway-Bence at the first Parathyroid Study Day at Cork University Hospital. youtu.be/b3TzMYGK4B0 #ParathyroidAwarenessMonthJuly2022

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2:28 pm · 13th July 2022

Read our quick guide to hypoparathyroidism

All about hyperparathyroidism

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