• Skip to primary navigation
  • Skip to main content
  • Skip to footer
Parathyroid UK Homepage

The national voice for people living with parathyroid conditions

Hypopara Helpline 01342 316315
  • Donate
  • About us
    • Our Teams
      • Board of Trustees
      • CEO & Management Committee
      • Support Team
    • Our Medical Advisors
    • Our history
    • Annual reports
    • Contact Us
  • Shop
  • News
    • Latest News
    • Newsletters
  • Home
  • Hypoparathyroidism

    Hypoparathyroidism

     

    Read our Quick Guide to Hypopara

    Suspect you have hypopara?

    Recently been diagnosed with hypopara?

    Find out more about hypopara

    What is hypopara?

    Causes of hypopara

    Diagnosis of hypopara

    Symptoms of hypopara

    Treatment of hypopara

    Related reading

    Thyroid cancer

    Thyroid surgery

    Related conditions

    CaSR

    • A quick guide to hypopara
    • Suspect you have hypopara?
    • Recently been diagnosed?
    • Causes
    • Diagnosis
    • Symptoms
    • Treatment
    • Thyroid cancer
    • What you should know before – and after – thyroid surgery
    • Calcium-sensing Receptor (CaSR)
    • Related conditions
  • Living with Hypopara
    • Get support
    • Self Help Guide
      • Understanding the basics
      • How to manage your calcium levels – practical steps
      • Understanding your tests
      • Understanding your medication
      • Diet
      • Exercise
      • Employment and Benefits
      • What else can I do to help myself?
    • For Women
      • Your hormones and calcium
      • For our hypopara mums
      • Your pregnancy, birth & breastfeeding journey
    • For Parents
      • Fertility and starting a family
      • My baby has hypoparathyroidism
      • Looking after children with Hypopara
    • Emergency ID items
    • Patient stories
    • Hypopara patient videos
    • Hypopara patient podcasts
  • Hyperparathyroidism
    • Support
    • Your parathyroid glands
    • Primary Hyperparathyroidism
    • Secondary Hyperparathyroidism
    • Tertiary Hyperparathryoidism
    • Parathyroid cancer
    • Patient stories
  • Get Involved
    • World Hypopara Awareness Day 2022
    • Become a member
    • Donate
    • Shop
    • Fundraise for us
    • Sponsor a fundraiser
    • Support Groups
  • Resources
    • Patient information leaflets & other publications
    • Support Groups
    • Emergency ID items
    • Find a Doctor
    • Guidelines
    • Key Research on Hypoparathyroidism
    • Newsletters
      • World Hypopara Awareness Day 2021
    • Key Research on Primary Hyperparathyroidism
    • Useful links for patients
    • European and Global Hypopara organisations
    • Health Organisations
  • Join us
  • Medical Professionals
    • Our Medical Advisors
    • Guidelines
    • Research
    • Order resources
    • Learning resources for healthcare professionals
      • Hypoparathyroidism for professionals
      • Hyperparathyroidism
      • Patients’ lived experiences
    • For Endocrine Nurses
    • For GPs
  • World Hypopara Awareness Day 2022
  • Become a member
  • Donate
  • Shop
  • Fundraise for us
  • Sponsor a fundraiser
  • Support Groups

World Hypopara Awareness Day 2022

World Hypopara Awareness Day is an annual global awareness and education event, held on 1st June and it’s the biggest day of our year. Every year, events are organised by hypopara patient groups around the world to raise awareness and improve understanding about our rare and challenging condition. For more information or to find a group in your own country please visit our dedicated World Hypopara Awareness Day website.

You are invited to THE party of the year!

The famous annual Hypopara Day party 2022 will be run by Parathyroid UK for 24 hours online and we invite you to join us. Last year people from 28 countries joined in and it was a fantastic social occasion.  Come to the  World Hypopara Day Party group on June 1st and say hello to old friends and new!

This year we ask ‘What’s your type?’ and our aim is to raise awareness about the many different types of  hypoparathyroidism to show that they all result in  similar challenging symptoms and are all so difficult to manage and treat.
What’s your type? Is your hypopara post surgical, autoimmune, idiopathic? Another type? Don’t know? Show us your type and send in your photo on the day. There will be prizes for the most creative adult and child entries. Don’t forget to share your photos and posts about Hypopara Day using the hashtag #HypoparaDay2022
For patients and professionals: 
We are delighted to bring you the first recording of the ESE Hypopara Patient Forum which was held in March 2022. Specialist clinicians and expert patients present sessions and discuss questions from patients around the world.
You can watch this interesting and informative collaboration on the ESE website  or on our You Tube channel.

 

Help us to fundraise
Hypopara patient Chris Short’s life was saved by parathyroid injections and he decided to he wanted to give back. He organised a car rally in Scotland to raise funds for our calcium home tester study. Watch his moving story here
Chris’ fundraising page is still open for donations if you are able to contribute. Help Chris reach £2,000 on Hypopara Day and make his day!

Happy hypopara day to everyone living with hypopara! We hope you have a good day and we can’t wait to see you all at the party

We  hope that everyone, patients and supporters, will help us to raise awareness about the impact of all types of hypoparathyroidism and the need for better care and treatment.

 

 

We are proud to be affiliated with:

ESE logo

Our information is also endorsed by:

BMA logo
British Thyroid Association
World Hypopara Awareness Day logo

We are members of:

Rare Diseases UK logo
Genetic Alliance UK
National Voices logo

Footer

Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

Delighted to announce that winner of the World Hypopara Day Party prize for best UK post by a child is Amelie-Eve. Congratulations to Amelie met our CEO Liz Glenister last week to receive her giant teddy. We hope you’re enjoying the bear hugs, Amelie! facebook.com/groups/… pic.twitter.com/vaDc…

reply retweet favourite
4:51 pm · 17th June 2022
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

Hypopara patients from a record 48 countries joined our awareness day party this year! (27 last year.) We had over 3,000 views, reached nearly 7,000 people with posts from people with post surgical, autoimmune, idiopathic, genetic, HDR, PHP, congenital & ADH. #HypoparaDay2022 pic.twitter.com/ONcr…

reply retweet favourite
4:49 pm · 16th June 2022
Twitter
National Voices
National Voices
@NVTweeting

Today one of our members @ThyroidTrust have released a new T3 Prescribing Report, highlighting the poor access to T3/liothyronine📰 Read the report in full here👉bit.ly/3NM3NOb twitter.com/ThyroidT…

reply retweet favourite
11:04 am · 14th June 2022 ·
Retweeted by Parathyroid UK
Twitter
Omair Shariq
Omair Shariq
@OmairShariq

John Bilezikian provides an update on upcoming guidelines from the 5th Intl. Workshop on Hyperpara highlighting involvement of multiple groups inc. @TheAAES. Grateful for opportunity to contribute as a (very) Jr. member of the surgical taskforce led by @DrNancyPerrier #ENDO2022 pic.twitter.com/63oE…

reply retweet favourite
11:44 pm · 12th June 2022 ·
Retweeted by Parathyroid UK
Twitter
Joy Wu
Joy Wu
@JoyYWu

Congratulations to John Wass, MD, MA, FRCP, winner of @TheEndoSociety Outstanding Leadership in Endocrinology Award #ENDO2022 pic.twitter.com/vtIP…

reply retweet favourite
11:38 pm · 12th June 2022 ·
Retweeted by Parathyroid UK

Read our quick guide to hypoparathyroidism

All about hyperparathyroidism

Parathyroid UK
6 The Meads
East Grinstead
West Sussex
RH19 4DF

Contact us

Hypopara Helpline: 01342 316315

© 2022 Parathyroid UK · All Rights Reserved · Privacy · Disclaimer · Site by Charity & Biscuits.