We work closely with our medical advisors, researchers and industry partners to help bring about badly needed new treatments for parathyroid conditions. We initiated the first global clinical trial on parathyroid hormone as a treatment for hypoparathyroidism in 2010. Natpara is sadly now withdrawn due to technical issues. Since then we have campaigned hard and been involved in many clinical trials and research studies to help improve the lives of parathyroid patients.
What is a clinical trial?
A clinical trial is a type of research study that tests how well new medicines or treatments work in people by comparing effects. Find out what happens in a clinical trial
How is a new medicine licensed for use?
The results from the trial are sent to the Medicines and Healthcare Regulatory Agency (MHRA), which decides whether to allow the company making the medicine to market it for a particular use. Before it can be marketed the drug must be licensed. This shows a medicine has met certain standards of safety and effectiveness. In England and Wales, the National Institute for Health and Care Excellence (NICE) decides whether the NHS should provide treatments.
Can I access new medicines?
You may be able to take part in a clinical trial which means that you may get a chance to try a new medicine. You may only get a placebo but, in some trials, you may be able to stay on the new drug once the trial has finished. Sometimes orphan drugs may be accessible via a ‘compassionate use ‘ programme, in exceptional cases.
Why should I volunteer to take part?
When anyone volunteers to take part in clinical research, they help doctors and researchers learn more about disease and improve health care for people in the future. As a patient you may also receive the newest treatment and have specialist care from the clinical trial staff.
Current trials
If we are supporting any current clinical trials, studies or surveys in which you may be able to get involved, you will find them here.Other trials may be found here