We are changing the way we are run. Parathyroid UK is registering as a charity and setting up a Board of Trustees who will govern us. Our trustees will include patients, healthcare professionals and people who have relevant skills and experience to offer.
We will continue to be run by CEO, founder and Chair of Trustees, Liz Glenister until she retires and a new CEO is found.
The trustees will oversee the two committees – hypopara and hyperpara – who will carry out the day to day running of the organisation aided by the Support Team.
Founder, CEO and Chair of Trustees
I founded Parathyroid UK (formerly Hypopara UK) in 2005 after living with undiagnosed brittle hypoparathyroidism following surgery for thyroid cancer in 1992.
I wanted to prevent this from happening to others, provide a safe forum, and access to information and support that simply wasn’t available then when so few doctors had heard of hypoparathyroidism. I had no idea what a battle I’d taken on.
Today, I am very proud to run the charity with the help of our fantastic volunteers, advisors and trustees. We work closely together and, as Parathyroid UK, we are deeply committed to improving the lives of people with all parathyroid conditions.