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The national voice for people living with parathyroid conditions

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  • Hypoparathyroidism

    Hypoparathyroidism

     

    Read our Quick Guide to Hypopara

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    What is hypopara?

    Causes of hypopara

    Diagnosis of hypopara

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    Related reading

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    Related conditions

    CaSR

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CEO & Management Committee

Founder and CEO

Liz Glenister

Chief Executive Officer

I founded Parathyroid UK (formerly Hypopara UK) in 2005 after living with undiagnosed brittle hypoparathyroidism following surgery for thyroid cancer in 1992.

I wanted to prevent this from happening to others and provide information and support that simply wasn’t available at a time when so few doctors had heard of hypoparathyroidism. I had no idea what a battle I’d taken on. I also wanted to break the isolation that patients with rare conditions feel and set up a safe forum to meet others.

Today, I am very proud to run the charity with the help of our fantastic volunteers and medical advisors. We work closely together and, as Parathyroid UK, we are deeply committed to improving the lives of people with all parathyroid conditions.

Management Committee

Janette Langdell

Deputy CEO, Shop Manager, Patient Support

Living with hypopara is extremely challenging. An invisible daily war with my own body has reluctantly become the norm since the age of 24.  After receiving years of support from Parathyroid UK it means a great deal for me to be able to give something back and to help those who have to live with this condition and the obstacles it presents on a daily basis.

As well as being Deputy CEO I have supported and advised patients in our facebook support group for some years and I also manage the Parathyroid UK Shop, raising awareness and funds from stock now bearing our new name and logo.

Mandy Mainland

Chief Operations Officer & Membership

Mandy has been actively involved with Parathyroid UK from the start. She supports Liz in the day to day running of the organisation and is also in charge of our growing membership database.

‘I live in Scotland. I had a total thyroidectomy in 2003 due to Grave’s Disease, which resulted in Hypoparathyroidism. I found Liz and the website in 2006 and finally began to find answers to my questions. I felt the need to get more involved soon after and now give as much time as I can to Parathyroid UK.’

Mary Mwangi

Newsletter Editor

‘I was diagnosed with thyroid cancer in 2016 and formally diagnosed with post-surgical hypoparathyroidism in 2018.  I am now on Teriparatide and seeing slightly more stable calcium levels.

I cannot stress enough how valuable the support from Parathyroid UK has been. It has armed me with the knowledge, strength and confidence to fight for my right to be heard and treated. I look forward to giving back as much as I have received.

I hope through this organisation we can collectively educate others about this rare disease and get the attention it deserves. So much has been done and we have more to do but there is comfort in knowing that we are moving in the right direction.’

Lisa Burke

Event Management, Patient Support

‘In August 2009, I had a routine thyroidectomy for Grave’s disease and ten days later walked out with a bag full of calcium not understanding what had happened or what was to come.  I found this site; suddenly I could communicate with others who understood my fears, had walked my path and I no longer felt alone. The advice and support I found here enabled me to carry on through the bad days.

This inspired me to volunteer for Parathyroid UK; being so rare there is great value in coming together to share experiences, offering support and advice and striving to get the best treatment for all.’

Bill Glenister

Finance Officer

‘I live in Sussex with my wife, Liz, and I am also her carer. Following family tradition, I dutifully trained to be a surgeon but finding I couldn’t stand so much blood, gave it up for my real love, painting. I taught art for 20 years before retiring due to M.E. and I now paint whenever I can find the time – with 4 daughters & 7 grandchildren life as a retired person can get pretty busy.

For Parathyroid UK I support Liz, help out at conferences and meetings and as Treasurer, I keep the accounts in order.’

Sasha Marshom

Public Awareness & Patient Support

‘I am 30 years old and have had hypoparathyroidism for 9 years now after a thyroidectomy for Graves Disease. I currently work full time and I am also studying natural medicine and holistic therapies. I am very passionate about helping those struggling with their health.’

You might also be interested in:

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We are proud to be affiliated with:

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Our information is also endorsed by:

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We are members of:

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Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

Delighted to announce that winner of the World Hypopara Day Party prize for best UK post by a child is Amelie-Eve. Congratulations to Amelie met our CEO Liz Glenister last week to receive her giant teddy. We hope you’re enjoying the bear hugs, Amelie! facebook.com/groups/… pic.twitter.com/vaDc…

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4:51 pm · 17th June 2022
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

Hypopara patients from a record 48 countries joined our awareness day party this year! (27 last year.) We had over 3,000 views, reached nearly 7,000 people with posts from people with post surgical, autoimmune, idiopathic, genetic, HDR, PHP, congenital & ADH. #HypoparaDay2022 pic.twitter.com/ONcr…

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4:49 pm · 16th June 2022
Twitter
National Voices
National Voices
@NVTweeting

Today one of our members @ThyroidTrust have released a new T3 Prescribing Report, highlighting the poor access to T3/liothyronine📰 Read the report in full here👉bit.ly/3NM3NOb twitter.com/ThyroidT…

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11:04 am · 14th June 2022 ·
Retweeted by Parathyroid UK
Twitter
Omair Shariq
Omair Shariq
@OmairShariq

John Bilezikian provides an update on upcoming guidelines from the 5th Intl. Workshop on Hyperpara highlighting involvement of multiple groups inc. @TheAAES. Grateful for opportunity to contribute as a (very) Jr. member of the surgical taskforce led by @DrNancyPerrier #ENDO2022 pic.twitter.com/63oE…

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11:44 pm · 12th June 2022 ·
Retweeted by Parathyroid UK
Twitter
Joy Wu
Joy Wu
@JoyYWu

Congratulations to John Wass, MD, MA, FRCP, winner of @TheEndoSociety Outstanding Leadership in Endocrinology Award #ENDO2022 pic.twitter.com/vtIP…

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11:38 pm · 12th June 2022 ·
Retweeted by Parathyroid UK

Read our quick guide to hypoparathyroidism

All about hyperparathyroidism

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