Chair and patient support
I share my house with my husband and daughter and 2 heavy metal black rescue cats.
I was diagnosed with PHPT in March 2018. I had my op in October 2019. Once recovered I was able to resume my passion for running and in 2019 I completed the London Marathon for Parathyroid UK.
I support others on their journey through the Facebook Group and am Chair of the Hyperpara Committee of Parathyroid UK. I want to raise more awareness and understanding of parathyroid conditions.
Research and patient support
I first qualified as a social worker and after completing a PhD in Applied Social Science I undertook various roles including course leader for a regional programme in Early Years Education, Head of Department of Social Science and Dean of the Faculty of Health.
At 40, I was diagnosed with PHPT following an emergency admission to hospital with a kidney stone. 30 years on I am cured of PHPT but carry its legacy in kidney stones and osteoporosis. I had the privilege of representing the charity as one of the two lay members of the committee which developed the NICE guidelines for hyperparathryoidism.
Parathyroid UK trustee and patient support
I am a retired nurse, integrative therapeutic counsellor and holistic practitioner. I took medical retirement five years ago from my role as Patient Services, Helpline and Advocacy Manager for a national medical charity after many years of debilitating illness – and three surgeries – due to primary hyperparathyroidism.
Now thankfully cured of pHPT, when I’m not on grandma duty I devote much of my time in support of others going through their hyperparathyroid journey by helping to run the Hyperpara UK Group and supporting Parathyroid UK on the board of trustees.
Membership and patient support
During the three years I struggled to get a diagnosis and surgery for primary hyperparathyroidism I found the support, information and advice I received from other pHPT suffers invaluable. So I welcomed the opportunity to run the Hyperpara online support group with my new pHPT friends in March 2017. I’m very happy to now be part of Parathyroid UK.
I retired after forty years in the Civil Service, and now work part-time for my daughter where we joke about who is actually the boss! When not working, I love to spend time with my six grandchildren and my crazy Labradoodle.
Info coming soon!