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The national voice for people living with parathyroid conditions

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    Hypoparathyroidism

     

    Read our Quick Guide to Hypopara

    Suspect you have hypopara?

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    Find out more about hypopara

    What is hypopara?

    Causes of hypopara

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    • A quick guide to hypopara
    • Suspect you have hypopara?
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    • Causes
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    • Self Help Guide
      • Understanding the basics
      • How to manage your calcium levels – practical steps
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      • Diet in Hypoparathyroidism : general guidance
        • Diet in Hypoparathyroidism Part 1 : Calcium
        • Diet in Hypoparathyroidism Part 2 : Phosphate
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      • Guidance for GPs : Managing primary hyperparathyroidism
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About us

Parathyroid UK is a small charity for people living with rare and hidden parathyroid disorders. It is the only patient organisation in the UK and Ireland devoted specifically to their needs. 

Who we are

We are currently run by our CEO and our management committee teams of volunteers who are patients themselves and understand how challenging and isolating it can be to live with a hidden, rare, unrecognised or long-term condition. We are in the process of setting up a new board of trustees.

We work closely with our medical advisors , professional societies and many health organisations to help bring about the best treatment and care.

What we do

We are passionate about providing the best possible service for you; everything we do is patient-led and we strive to do it with empathy and integrity.

We campaign for better care and raise awareness to bring about better recognition of the needs of patients living with all the rare hypoparathyroidism conditions, and more recently, with the more common but also hidden hyperparathyroidism conditions too.

We bring together healthcare professionals who work with us to produce information, educate others and identify areas for research.

We have helped to bring about many firsts – clinical trials, treatment and guidelines  – but we’re not out of the woods yet.  Living with a parathyroid hormone condition of any kind is a complex challenge that still needs better care, understanding,  management and treatment.

We reach out around the world to find new patients and found new organisations. We also run European and a World facebook support groups which translate languages so nobody gets left out. For hypopara, we set up a World Hypopara Awareness Day on June 1st to help our global voice grow even stronger, to increase numbers and make us a viable concern for researchers.

Patient Support

Patient support is always our first priority. Our online support groups are safe and welcoming places to learn, share experiences and meet others who ‘get’ it. We are a parathyroid family; our hypopara members are with us for life and our hyperpara members, although eventually cured, may also go undiagnosed for years so many close friendships are made. New members in both groups often comment on how warm and supportive we all are and how much they learn from each other.


In this section:

Our Teams

Our Medical Advisors

Our Sponsors

Our history

Annual reports

Contact Us

We are proud to be affiliated with:

ESE logo

Our information is also endorsed by:

BMA logo
British Thyroid Association
World Hypopara Awareness Day logo

We are members of:

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Genetic Alliance UK
National Voices logo

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Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

Webinar topics : Calcium home tester update, Managing Your Hypopara, the PTH Calypso trial and Hypopara in Children ( including pump use.) twitter.com/parathyr…

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10:30 pm · 12th June 2023
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

Here is the webinar recording of our #Hypopara Info Update 2023 . Huge thanks to our speakers Prof Jeremy Turner, Mr Tom Kurzawinsky, Dr Mark Sumeray & Dr Evelien Gevers. youtu.be/6HbhBd-bXDM @Soc_Endo @baets @ESEndocrinology @IrishEndocrine @AmolytPharma

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1:15 pm · 12th June 2023
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

Tonight 8pm! twitter.com/Parathyr…

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8:10 am · 8th June 2023
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

A poll of worldwide hypopara patients on #HypoparaDay2023 asked “Are you symptomatic today?” 160 responded: 70% YES 29% NO pic.twitter.com/egF1…

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8:34 am · 3rd June 2023
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

We’ll be holding our first #hypopara webinar 8pm on 8th June. Register here us06web.zoom.us/webi… @AmolytPharma @Soc_Endo @ESEndocrinology @IrishEndocrine #HypoparaDay2023 pic.twitter.com/T4RV…

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8:57 am · 2nd June 2023

Read our quick guide to hypoparathyroidism

All about hyperparathyroidism

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