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The national voice for people living with parathyroid conditions

Hypopara Helpline 01342 316315
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  • Hypoparathyroidism

    Hypoparathyroidism

     

    Read our Quick Guide to Hypopara

    Suspect you have hypopara?

    Recently been diagnosed with hypopara?

    Find out more about hypopara

    What is hypopara?

    Causes of hypopara

    Diagnosis of hypopara

    Symptoms of hypopara

    Treatment of hypopara

    Related reading

    Thyroid cancer

    Thyroid surgery

    Related conditions

    CaSR

    • A quick guide to hypopara
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About us

Parathyroid UK is a small charity for people living with rare and hidden parathyroid disorders. It is the only patient organisation in the UK and Ireland devoted specifically to their needs. 

Who we are

We are currently run by our CEO and our management committee teams of volunteers who are patients themselves and understand how challenging and isolating it can be to live with a hidden, rare, unrecognised or long-term condition. We are in the process of setting up a new board of trustees.

We work closely with our medical advisors , professional societies and many health organisations to help bring about the best treatment and care.

What we do

We are passionate about providing the best possible service for you; everything we do is patient-led and we strive to do it with empathy and integrity.

We campaign for better care and raise awareness to bring about better recognition of the needs of patients living with all the rare hypoparathyroidism conditions, and more recently, with the more common but also hidden hyperparathyroidism conditions too.

We bring together healthcare professionals who work with us to produce information, educate others and identify areas for research.

We have helped to bring about many firsts – clinical trials, treatment and guidelines  – but we’re not out of the woods yet.  Living with a parathyroid hormone condition of any kind is a complex challenge that still needs better care, understanding,  management and treatment.

We reach out around the world to find new patients and found new organisations. We also run European and a World facebook support groups which translate languages so nobody gets left out. For hypopara, we set up a World Hypopara Awareness Day on June 1st to help our global voice grow even stronger, to increase numbers and make us a viable concern for researchers.

Patient Support

Patient support is always our first priority. Our online support groups are safe and welcoming places to learn, share experiences and meet others who ‘get’ it. We are a parathyroid family; our hypopara members are with us for life and our hyperpara members, although eventually cured, may also go undiagnosed for years so many close friendships are made. New members in both groups often comment on how warm and supportive we all are and how much they learn from each other.


In this section:

Our Teams

Our Medical Advisors

Our history

Annual reports

Contact Us

We are proud to be affiliated with:

ESE logo

Our information is also endorsed by:

BMA logo
British Thyroid Association
World Hypopara Awareness Day logo

We are members of:

Rare Diseases UK logo
Genetic Alliance UK
National Voices logo

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Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

Coming soon… the annual official World Awareness Day campaign on 1st June brings together #hypoparathyroidism patients from around the world for our much loved 24 hour online global party. Bring it on! 🥳 pic.twitter.com/RAfk…

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10:04 am · 17th May 2022
Twitter
Turner Syndrome Soc
Turner Syndrome Soc
@TurnerSyndSoc

Parent carers in Scotland are invited to join @FamilyFund and @CareBreaks for a webinar to learn more about #TakeABreak grants available to help carers of disabled children have a break. Tuesday 24 May at 12:30pm and Friday 27 May at 10:00am. bit.ly/TABSwebinar20…

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8:23 am · 17th May 2022 ·
Retweeted by Parathyroid UK
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

pic.twitter.com/SJlM…

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3:34 pm · 16th May 2022
Twitter
European Society of Endocrinology (ESE)
European Society of Endocrinology (ESE)
@ESEndocrinology

Hormones are biological messengers that travel throughout the body, telling our cells and tissues what to do. Read our infographic and learn about their role. #BecauseHormonesMatter #EuropeanHormoneDay #endocrinology #AwarenessDays pic.twitter.com/k1fd…

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12:42 pm · 15th May 2022 ·
Retweeted by Parathyroid UK
Twitter
Parathyroid UK
Parathyroid UK
@ParathyroidUK

Happy Nurses Day to you wonderful people and a special shout out to all ENDOCRINE nurses everywhere and to nurses who are also patients living and working with a parathyroid condition. #NursesDay2022 pic.twitter.com/rMIt…

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12:02 pm · 12th May 2022

Read our quick guide to hypoparathyroidism

All about hyperparathyroidism

Parathyroid UK
6 The Meads
East Grinstead
West Sussex
RH19 4DF

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Hypopara Helpline: 01342 316315

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