We are the only organisation in the UK & Ireland dedicated to improving the lives of everyone affected by parathyroid conditions.
What is hypoparathyroidism?
Hypoparathyroidism (also known as Hypopara or HPTH) is a rare endocrine disorder in which the parathyroid glands are unable to produce enough parathyroid hormone. This leads to a low concentration of calcium in the blood.
How can we help?
- I'm worried I have hypopara
- I have recently been diagnosed with hypopara
- I am living with hypopara
- I'm a medical professional
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Parathyroid UK publicises One Alpha shortages
Today, in The Guardian Rare Disease section, we call for action on the current shortage of One Alpha. Our campaign to highlight this national problem... -
Shortages of One Alpha
Following reports from members of difficulty accessing One Alpha (Alfacalcidol) medication we have circulated the following information regarding temporary shortages due to problems with manufacturing... - Provide practical and emotional support to people living with parathyroid conditions
- Campaign for better awareness and treatment of parathyroid conditions
- Educate GPs and Endocrinologists about these conditions
- Keep our members up to date about the latest treatments and clinical trial opportunities
What is hyperparathyroidism?
Primary hyperparathyroidism (also known as PHPT or Hyperpara) is an endocrine disorder in which one or more of the parathyroid glands produce too much parathyroid hormone. This leads to a high calcium concentration in the blood.
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I have realised how difficult it must be for patients to continue to trust their doctors when faced with chronic illness.