We are the only organisation in the UK & Ireland dedicated to improving the lives of everyone affected by parathyroid conditions.
What is hypoparathyroidism?
Hypoparathyroidism (also known as Hypopara or HPTH) is a rare endocrine disorder in which the parathyroid glands are unable to produce enough parathyroid hormone. This leads to a low concentration of calcium in the blood.
How can we help?
- I'm worried I have hypopara
- I have recently been diagnosed with hypopara
- I am living with hypopara
- I'm a medical professional
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Positive results from new hypopara drug
Great news to see on World Hypopara Awareness Day 2022! ”Amolyt Pharma announces positive results from phase 2a trial of AZP-3601 for the treatment of... -
Natpar shortages
We are very sorry to tell you that Takeda have just informed us of shortages of the 100mcg dose of Natpar from late June/early July... - Provide practical and emotional support to people living with parathyroid conditions
- Campaign for better awareness and treatment of parathyroid conditions
- Educate GPs and Endocrinologists about these conditions
- Keep our members up to date about the latest treatments and clinical trial opportunities
What is hyperparathyroidism?
Primary hyperparathyroidism (also known as PHPT or Hyperpara) is an endocrine disorder in which one or more of the parathyroid glands produce too much parathyroid hormone. This leads to a high calcium concentration in the blood.
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“Liz and her colleagues are amongst the nicest, compassionate, friendly, helpful people I have ever met.”
Become a member today and you can join one of our private Facebook Groups.
They’re a great source of friendship and support from fellow people living with rare parathyroid conditions.
Featured story
In April last year I was lucky enough to get funding to try this drug as I was so difficult to manage on the other drugs. I am happy to say that since starting the injections my quality of life is hugely improved. My calcium level is much more stable, and as a consequence I can do much more of what I have planned.