We are the only organisation in the UK & Ireland dedicated to improving the lives of everyone affected by parathyroid conditions.
What is hypoparathyroidism?
Hypoparathyroidism (also known as Hypopara or HPTH) is a rare endocrine disorder in which the parathyroid glands are unable to produce enough parathyroid hormone. This leads to a low concentration of calcium in the blood.
How can we help?
- I'm worried I have hypopara
- I have recently been diagnosed with hypopara
- I am living with hypopara
- I'm a medical professional
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Presenting ‘The patient perspective on hypoparathyroidism’ to the eECE2021
“The Patient’s Voice – Where Patient Experience meets Clinical Science.” Watch the session here This year European Society for Endocrinology (ESE) created an exciting new... -
Rare Disease Day 2021
Hypoparathyroidism is one of many rare diseases. Today we support the annual Rare Disease Day held on the last day of February and join with... - Provide practical and emotional support to people living with parathyroid conditions
- Campaign for better awareness and treatment of parathyroid conditions
- Educate GPs and Endocrinologists about these conditions
- Keep our members up to date about the latest treatments and clinical trial opportunities
What is hyperparathyroidism?
Primary hyperparathyroidism (also known as PHPT or Hyperpara) is an endocrine disorder in which one or more of the parathyroid glands produce too much parathyroid hormone. This leads to a high calcium concentration in the blood.
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“Liz and her colleagues are amongst the nicest, compassionate, friendly, helpful people I have ever met.”
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They’re a great source of friendship and support from fellow people living with rare parathyroid conditions.
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Featured story
I asked my GP to refer me for a second opinion, knowing that I needed surgery, but he refused. I left the GP practice that day and joined my partners’ GP surgery. Within a couple of weeks, I had an appointment with my new GP who was very helpful and understanding