We are the only organisation in the UK & Ireland dedicated to improving the lives of everyone affected by parathyroid conditions.
What is hypoparathyroidism?
Hypoparathyroidism (also known as Hypopara or HPTH) is a rare endocrine disorder in which the parathyroid glands are unable to produce enough parathyroid hormone. This leads to a low concentration of calcium in the blood.
How can we help?
- I'm worried I have hypopara
- I have recently been diagnosed with hypopara
- I am living with hypopara
- I'm a medical professional
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NICE Primary Hyperparathyroidism Guidelines
Joy Foster from our Hyperpara was a lay member on the NICE guidelines committee. Thanks to Joy for all her hard work and an excellent... -
ECE2019 Lyon
Mari Hartgen and Isabel Wray da Silva at the ECE in Lyon, France, in May this year. A very successful meeting. - Provide practical and emotional support to people living with parathyroid conditions
- Campaign for better awareness and treatment of parathyroid conditions
- Educate GPs and Endocrinologists about these conditions
- Keep our members up to date about the latest treatments and clinical trial opportunities
What is hyperparathyroidism?
Primary hyperparathyroidism (also known as PHPT or Hyperpara) is an endocrine disorder in which one or more of the parathyroid glands produce too much parathyroid hormone. This leads to a high calcium concentration in the blood.
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I feel confident with my doctors. However, I do think you are left to cope on your own too much and in between appointments you have to manage things yourself, which is difficult as there is no home testing kit for calcium levels.