We are the only organisation in the UK & Ireland dedicated to improving the lives of everyone affected by parathyroid conditions.
What is hypoparathyroidism?
Hypoparathyroidism (also known as Hypopara or HPTH) is a rare endocrine disorder in which the parathyroid glands are unable to produce enough parathyroid hormone. This leads to a low concentration of calcium in the blood.
How can we help?
- I'm worried I have hypopara
- I have recently been diagnosed with hypopara
- I am living with hypopara
- I'm a medical professional
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Calypso PTH trial opens in UK
We are delighted to announce that the Calypso trial from Amolyt Pharma has arrived in the UK . For those with chronic hypoparathyroidism, the study... -
2nd ‘Hypopara Patient Forum’ webinar
UPDATE – 22nd Nov 2023 – recordings of the webinar are now available in English, French, Spanish and German on the European Society of Endocrinology... - Provide practical and emotional support to people living with parathyroid conditions
- Campaign for better awareness and treatment of parathyroid conditions
- Educate GPs and Endocrinologists about these conditions
- Keep our members up to date about the latest treatments and clinical trial opportunities
What is hyperparathyroidism?
Primary hyperparathyroidism (also known as PHPT or Hyperpara) is an endocrine disorder in which one or more of the parathyroid glands produce too much parathyroid hormone. This leads to a high calcium concentration in the blood.
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“Liz and her colleagues are amongst the nicest, compassionate, friendly, helpful people I have ever met.”
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They’re a great source of friendship and support from fellow people living with rare parathyroid conditions.
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I have realised how difficult it must be for patients to continue to trust their doctors when faced with chronic illness.